Apr 30, 2017

Confessions of an Alzheimer's Caregiver

To be a caregiver for a person living with dementia is not an easy task. I am sure anyone reading the Alzheimer's Reading Room knows this by now.

I feel guilty most of the time, I always wish I could do a better job than I do

However, the issues aren’t just the actual "taking care".

In addition to the difficulties of caregiving, I think many of us struggle with the emotional issues of guilt and frustration, and, quite truthfully, never really knowing if we are doing the right thing.

8 Suggestions For Eating Out with a Person Living with Dementia

Caregivers are often reluctant to take their love one out to a restaurant. Don't be. Once you get the hang of it, and get in the grove, you and your loved one will benefit greatly.


8 eating suggestions for Dementia care and Alzheimer's caregivers
By Bob DeMarco
Alzheimer's Reading Room

Several years ago I wrote, Alzheimer's Caregiver Lament -- I Can't Take Her Out because She Eats with Her Hands; and now, I am once again reminded how very difficult it can be for caregivers to take their loved one out to eat.

One of the biggest problems caregivers face is the stigma attached to Alzheimer's disease and dementia. For certain, this can be a very big emotional and psychological hurdle and barrier for caregivers.

Some caregivers overcome this obstacle by carrying a card they can hand to service people, or people they encounter while out. Like the one above.



Alzheimer's Care, I took care of my mom for 3,112 days

It not unusual for dementia care to last more than eight years.
By Bob DeMarco
Alzheimer's Reading Room

After reading, 16 Ways to Get a Dementia Patient to Eat More Food, a reader wondered if the author actually took care of someone living with dementia.

I took care of my mom, Dotty, for eight and a half years. I was with her for 3,112 days.

My mom went to Heaven on May 25, 2012. She was right here at home.


Apr 28, 2017

Routine and the Importance of the First Action of the Day in Dementia Care

In the beginning my mother, who lived with dementia, would wake up with a scowl on her face, a negative attitude, and would often seem less there - like she was out of it memory wise.


The importance of a daily routine in Alzheimer's care and dementia care cannot be underestimated.

The importance of a daily routine can not be underestimated.


After a while, I noticed that my mother started to engage in the same "difficult" behaviors at the same time every day.

I finally decided I would "build" a daily routine to both address these problems; and to change the daily paradigm.