Bob DeMarco Alzheimer's Reading Room

Wednesday, August 20, 2014

Alzheimer's Robbed Us of Our Ability to Communicate

Our communication and the way we related to each other changed - abruptly, over night. It was as if our ability to communicate effectively had been robbed from us.

By Bob DeMarco
Alzheimer's Reading Room

Alzheimer's Robbed Us of Our Ability to Communicate

I knew and understood the changes that were being caused by Alzheimer's disease. On the other hand, my mother couldn't see the change. She couldn't understand what was happening.

When my mother would say something mean, or act out crazy behavior, I experienced the same emotions that most Alzheimer's caregivers experience -- anger, frustration, and agitation.

Over the course of my life I had learned how to cope and deal with problems. They no longer worked  with a person living with dementia.

Looking in from the outside at Alzheimer's, most people would conclude its easy to come to an understanding that the meanness and craziness are a direct result of the disease -- Alzheimer's. Alzheimer's causes these erratic behaviors.

Tuesday, August 19, 2014

Looking for the Origins of Alzheimer’s disease in the Brain

Scientists at Stanford Medicine are at the forefront of research into how Alzheimer’s disease develops.

Alzheimer's Reading Room

Source: Stanford Medicine

Six or so years ago, Frank Longo, MD, PhD, Stanford’s chair of neurology and neurological sciences, was optimistic that a treatment for Alzheimer’s disease was on its way.

More than a decade earlier, pharmaceutical companies had begun testing drugs to eradicate one of its hallmark signs — clumps of protein sprinkled randomly throughout the brain. The drugs were antibodies that bind to the protein, called beta amyloid, or A-beta for short.
“They poured a lot of money into clinical trials of these antibodies in Alzheimer’s patients,” Longo said. “And by around five years ago, with the conclusion of early-stage trials, it looked like they might succeed. So, many in the field — including me — had some guarded optimism that when the pivotal phase-3 trials were completed, this approach would have at least some beneficial effect.”

Monday, August 18, 2014

The First Thing You Feel is Guilt

I will never again watch fireworks on the Fourth of July without reminding myself of the need to be free of my guilt. Like most Alzheimer's caregivers, guilt is the first thing you feel.

By Donna StClair
Alzheimer's Reading Room

Today I Will Choose Joy

Guilt is a hard feeling to shake. Impossible maybe.

Why didn't I see the signs? Why didn't I get help sooner? What was I thinking?

On July 4, 2010, my husband Bruce and I had taken our grand kids to North Carolina's Outer Banks for a vacation. We joined our elementary school-aged granddaughters for an activity called "Blackbeard's Treasure Hunt" at a nearby state park. Bruce partnered with one child, I with the other.

The park ranger gave participants a compass and set of simple instructions, geared toward a third- or fourth-grader. Everyone fanned out down a series of trails, excited about finding the famed pirate's booty.

The older girl and I finished in short order and exchanged our high five's. We sat on a nearby bench and waited for her sister and grandfather to emerge.

And we waited. And we waited. And we waited ...

Sunday, August 17, 2014

How do Alzheimer's Caregivers Think and Feel?

Which of he following apply to you as an Alzheimer's caregiver? Which of these constantly bother you?

How do Alzheimer's Caregivers Think and Feel?

By Bob DeMarco
+Alzheimer's Reading Room

The typical Alzheimer's caregiver experiences an array of feelings and emotions each day.

Typical feelings include a sense of hopelessness, sadness, anger, stress, and an inability to control or change the situation.

Alzheimer's caregivers also experience feelings of happiness, accomplishment, and a strong sense of responsibility.

Saturday, August 16, 2014

Alzheimer's Caregivers Answer the Calling

At the beginning of my travels with Alzheimer's disease, I had to get over the shock when the diagnosis of dementia came. That took what seemed like a minute, but it was over a year.

By Bob DeMarco
Alzheimer's Reading Room

Alzheimer's Caregiver Answer the Calling
It is not easy being an Alzheimer's caregiver. You have to evolve and learn new skills.. Pretty much every day. There aren't any shortcuts.

Many of us know the feeling of abandonment that comes with Alzheimer's disease.

Family, friends, sometimes they run away. Or, disappear. This is hard to accept.

Friday, August 15, 2014

What People With Alzheimer’s Have Taught Me About Love

People living with Alzheimer's taught me about the never-ending and unconditional power of love. They've taught me that love matters.

By Marie Marley
Alzheimer's Reading Room

What People With Alzheimer’s Have Taught Me About Love

People with Alzheimer's have taught me a lot about love over the years.

I learned that they may remember past love and also experience love in the present -- even if they don't talk anymore and even during the last days of their lives.

Thursday, August 14, 2014

Dr Oz Eat Curry to Prevent Alzheimer's Disease

Dr.Oz's suggests eating curry once or twice a week to help prevent Alzheimer's disease.

By Bob DeMarco
Alzheimer's Reading Room

Dr Oz Eat Curry Prevent Alzheimer's Disease
Dr. Oz
From time to time, Dr Oz covers Alzheimer's disease on his television show.

He usually devotes about one third of his show to Alzheimer's disease when he covers the topic.

He always does a great job of framing the impending epidemic that is Alzheimer's.

Dr Oz mentioned that every 68 seconds someone is diagnosed with Alzheimer's disease. By the time you finish reading this article several more people will be suffering from Alzheimer's. Another group of Alzheimer's caregivers will come into being.