Friday, March 27, 2015

Study of 3,600 Brains Reveals Tau as Driver of Alzheimer’s Disease

Alzheimer's Reading Room

By examining more than 3,600 postmortem brains, researchers at the Mayo Clinic found that the progression of dysfunctional tau protein drives the cognitive decline and memory loss seen in Alzheimer’s disease. Amyloid, the other toxic protein that characterizes Alzheimer’s, builds up as dementia progresses, but is not the primary culprit, they say.

Study of 3,600 Brains Reveals Tau as Driver of Alzheimer’s Disease | Alzheimer's Reding Room

The findings, published in Brain, offer new and valuable information in the long and ongoing debate about the relative contribution of amyloid and tau to the development and progression of cognitive dysfunction in Alzheimer’s, says the study’s lead author, Melissa Murray, Ph.D., a neuroscientist at Mayo Clinic.

Thursday, March 26, 2015

HOPE for Alzheimer's Act - Health Outcomes, Planning, and Education

WE like to complain in the Alzheimer's community that no one helps us. Is their HOPE? This is our time and it is up to each and everyone of us to take action - NOW.

HOPE for Alzheimer's Act - Health Outcomes, Planning, and Education  | Alzheimer's Reading Room

Alzheimer's Reading Room
  1. The HOPE for Alzheimer's Act will ensure newly diagnosed Medicare beneficiaries and their caregivers receive comprehensive care planning services and will require their diagnosis to be documented in their medical record.
  2. Although Medicare already provides coverage of Alzheimer's disease diagnostic services, it currently does not provide coverage for comprehensive care planning following a diagnosis.
  3. The Act, if passed, will also help inform health care providers about what steps should be taken following a diagnosis, which will enhance assistance for people with Alzheimer's and their caregivers.
This is our TIME.

Pick up the phone and call your elected United States Senator or member of the House of Representatives and tell them you want their support for the HOPE for Alzheimer's Act (S. 857 / H.R. 1559).

Don't write, don't email, pick up the phone.

When you call ask for the "constituent liaison". This is the person responsible for talking to constituents (voters). Use the links below to find the phone number.

It is time for us to stop complaining that the government is ignoring us. This is our time, and this is our chance, to let them know how we, the voters, feel on issues like this one.

It is pretty simple. Either you are part of the problem, or part of the solution.

Please take action right now - pick up the phone. Please share this in Alzheimer's support groups, and via social media (Google +, Facebook, Twitter, etc). Get everyone you know to call.

I can only pray that the more than  5 million families that are currently living with Alzheimer's will pick up the phone and make a difference. Will you and the members of your family do it?

Contact your United States Senator

Contact your United States Representative in Congress
"Current coverage for care planning falls short of what is necessary for people newly diagnosed with Alzheimer's and their families to adequately process and plan for their new reality," said Robert Egge, Alzheimer's Association chief public policy officer. "This legislation encourages doctors to talk to their patients about an Alzheimer's diagnosis and ensures that the necessary steps are taken to provide them with access to available care planning services."
This is a direct appeal to every member of the Alzheimer's Community.

Wednesday, March 25, 2015

6 Tips for Alzheimer's CareGivers and Their Families

I can still remember vividly when I made the best decision of them all. I decided that Dotty and I would start living our lives the way we always had.

6 Tips for Alzheimer's CareGivers and Their Families | Alzheimer's Reading Room

Alzheimer's caregiving is difficult under almost any circumstance.Let's face it, when Alzheimer's disease strikes most of us don't have a clue about what we should do. This included me.

At the beginning, everything I knew about Alzheimer's caregiving would have fit into a thimble.

What made me different?

I decided to learn everything I could about Alzheimer's disease, and I was determined to turn the horrific experience of the typical Alzheimer's caregiver into a positive, rewarding experience.

Tuesday, March 24, 2015

What to Do When You Just Can’t Take it Anymore

Anyone who has been a caregiver for a person with Alzheimer’s or a related dementia knows that there are times when you simply just can't take it anymore.

What to Do When You Just Can’t Take it Anymore | Alzheimer's Reading Room

It doesn’t mean you love the person less – it just means you don’t feel like you can cope another minute.