Monday, August 3, 2009

60 Reasons to Subscribe to the Alzheimer's Reading Room



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Thanks for all YOU are doing to support those of us who are currently caring for a loved one or have previously done so. Your site is AMAZING!
--Judy Berry, founder of the Dementia Care Foundation and LakeView Ranch

This is a powerful and touching story. You are noble both for finding and utilizing these poignantly human strategies that work but also for sharing what you have learned with so many who need what you have to give.
--Anthony Polk


As someone with Alzheimer's who still remains somewhat functional, I find your works informative and right on target.
--Ronald M. Reisner, M.D.

Your wisdom, patience, creativity, insight and compassion are an inspired and unparalleled model for Alzheimer's care partners everywhere. I have been diagnosed with younger onset AD and my care partner finds your posts the BEST. You advice makes sense to me as well. I especially appreciate your respect and understanding for Dottie's "world" Thank you for your posts and your great efforts.
--Mercedes

I continue to be amazed and humbled by your work.
--Laurence C. Harmon, Great Places


Your like a great uncle whose inspiration is intoxicating each and every chance meeting.
--Lou Nevola

I am grateful for your consistent, timely and accurate information. Thank you for all that you are doing.
--Lisa Bottke, Clinical Educator, Hospice of Palm Beach County


There are many websites that provide information about Alzheimer’s, but I have been most impressed by the Alzheimer’s Reading Room.

No other site provides the varied content, and frequency that the Alzheimer’s Reading Room does.

Bob DeMarco does an excellent job of posting the latest medical information, as well as great techniques and resources when caring for a loved one afflicted with Alzheimer’s.

Bob’s personal experience, caring for his mother with Alzheimer’s, is the core of his work. He understands the questions, concerns, needs, frustrations, and joy of providing care. He is able to help families through education, information, and resources he finds important and helpful.

I highly respect his work and would recommend subscribing to the Alzheimer’s Reading Room. Anyone caring for a loved one or patients with Alzheimer’s and other Dementia’s will greatly benefit from the information provided.
--Angil Tarach, Owner/Director, Visiting Angels/ Ann Arbor

Most of all I find your words comforting in a world where I feel totally alienated. Despite the fact that I have friends with whom I can speak about my tiny shuttered life, it is not the same as speaking to someone who knows about "being the one" and "being abandoned".
--Pamela

This is an amazing blog and has given me so much good advice on coping with my father's illness. Thank you, Bob
--Sue Skiles

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These poems are so beautiful, poignant and powerful! Every day, I check with anticipation my e-mail box for your articles and this one is very close to my heart and belief about the exceptional power of the human touch. Thanks you so much for sharing.
--Lynda Laurin

I was feeling realy down my beautiful husband has just been diagnosed with lewy bodys dementia he is only 63 and me and my family are absolutley devestated.I was searching the lewy body site and I saw your picture to say the least I was curious to see where it would lead me and it lead me to you Bob. As I live in England I have looked at many sites none come close to yours. I feel like I have found a family and not alone as this horrendous illness raveges my husbands body and mind. All our love to you lovely people in America that are going through the same as we are.
--Carolina deRossi

If information and awareness are included in your goal list, you have fantastically succeeded with The Alzheimer's Reading Room. It is very impressive! On behalf of many readers, I would like to extend huge appreciation. Thank you so much for the time and effort you to exert sharing this information.
--Christy Griner Hulsey, Moon Dreams and Day Beams

Your webpage, your blog, the information you accumulate and disseminate -- all of it has been a lifeline for me for the past several years. You will not hear this enough, but please know that your efforts are appreciated every day. Thank you for being there for so many of us.
--Judy

Your lines: "Knowing that your loved one is going to forget simple things like how to brush their teeth, how to take a shower, and even how to eat is not a pleasant thought. The actual experience and feeling of helplessness cannot be described"
--were wonderful; I cried when I read them. Sometimes crying is good. It's sad, but it makes me feel something kindred to read what I'm feeling.
--Jessica

I enjoy and read your posts daily. Thank you!
--Kerry Runyeon, Living the Moment with Lily Bird
Bob DeMarco is a person who is not only a caregiver for his mother, but also helps many others online. In my many years of being both an Alzheimer’s caregiver and working with other Alzheimer’s patients and caregivers, I have never seen anyone give so much to the cause. The information on dementia/Alzheimer’s he posts on The Alzheimer’s Reading Room is up-to-date, informative, understandable and, at times, intriguing. He has answered questions professionals could not or wouldn't even listen to and given hope to many. As I, he is one who wants this disease of Alzheimer’s stopped—cured—not just put on hold. Thank you Bob for all the work and time you put into helping others, as you dedicate yourself to your mother.
--Rose Lamatt, author, "Just a Word" friends encounter Alzheimer's.
We follow Bob and AlzheimersRead on Facebook and Twitter, because both father and father-in-law live with Alzheimer diagnosis. Love the relevant info and real life comfort.
--Judy Best, Best Cruise Planners
Thank you for your website. I devour all the articles you write. I only wish I had found your site sooner. You are such an inspiration!
--Dawn
Your poignant words bring tears to my eyes. I am caring for my 90-year old mother and often feel lonely and abandoned. Your blog reminds me that there are countless others like yourself who are riding the same emotional rollercoaster. You have to be a caregiver to fully understand and appreciate your comments. I am running with you.
--Arnie the K
Thank you so very much for providing us with this wonderful website.
--Deborah Ann Tornillo, author, 36 Days Apart
Fantastic site Bob. For all of us out there fighting for families with Alzheimer's, your site provide great insight into the challenges we all face. Please keep up the great work.
--Brian
Alzheimer's Reading Room is one of my favorite blogs on the subject. I have continually learned something new since I started following Bob on Twitter (@ALZHEIMERSread) which led me to the blog. Bob always sends out very informative tweets with links to articles around the web. I know I am always learning (or finding!) something new & interesting if I follow them. The blog is also a great resource to follow, especially if you are caring for and love someone with Alzheimer's disease.
--Senior Living Experts, Inc
He is gone now, but I don't regret anything. We promised him he could die at home and he did.
--Anonymous
First off I want to thank you for being the Caregiver that you are to your Mom. Being a Mom myself, I'm so proud of you for that! I also want to thank you for creating the Reading Room. My daughter and I have gleaned great input thru the Alzheimer's Reading Room.
--Patrice
Thanks for what you write -- I appreciate reading your insights.
--Kris Bakowski, Creating Memories
Bob - I am one caregiver you have helped through your blog and I thank you...I don't feel alone when I come here and read.
--Gloria Galvan
I want to give you my compliments for all the work you do at the Alzheimers Readingroom.
With interest I read most of your articles, and I must say I admire the "work" you do for your mother.
Keep up doing the good work!
--Ariane V. van Egeraat, KEMP and VAN EGERAAT
You help me feel like I am not all alone in my world caring for my Dad. God bless you!
--Sandy
The information is INVALUABLE... I don't feel like I'm all alone in dealing with my mother. ...thanks for your energy.
--Liz S
Thank you so much for your informative articles and insights.
--Brenda, Dementia Weekly
I have been following the site with much interest over the past weeks and I'm subscribed to your emailing list. It helps my patients and I when I can see their disease through their eyes.
--Dr. Sean Marquez
Bob thanks for hosting this site and providing so much helpful information.
--Ninah Kessler, Brain Optimization
I am a Certified Alzheimer's Trainer. The information you gather is invaluable! One of the biggest challenges I face is convincing families to face the ugly reality of dementia.
--Margie
A year ago, my sister was diagnosed with early onset dementia and your newsletter brings invaluable important information, and some sort of comfort to me knowing that we're not alone. Thanks for everything Bob!
--Lynda Laurin
Thanks so much for all of your information...Still working with my family with the information with which you provided on how to approach our father.
--Lori
Thanks for the helpful information you provide. My wife has Alzheimer's and lives in a nearby RCFE.
--Dan Crossland
..By the way Bob You have been an you have been an inspiration to me through my journey. My God bless you in all that you do :)
--Oak Runner
very much appreciate all your help, as well as all the comments from other readers of your site... I dread what is coming in the future.
--Anon
I find the information on the Alzheimer's Reading Room informative and inspirational.
--Amberly, Starlite Caregivers
This is one of the saddest journies a married couple can take.
--Nancy Bigelow
I have told many people about your website--it has been very helpful to me. Thank you!
--Pat
Thanks for the updates on research so they can be passed on to my caregivers in training.
--Jan Nelson, Center for Courageous Aging
Thanks for the wonderful information you provide in your newsletter.
--Alison Hedlund
Thank you for all the very useful support you provide.
--Peter Fort
Thank you so much for all you do to help us deal with this crummy disease, Bob. I've been caring for my father for almost 11 years now.
--Katherine
I am looking after my 77-year-old step-father with dementia/alzheimers who moved here to us near Berlin, Germany...Your page is good. Thanks for your energy.
--Jana Marie
Thanks for your website and all the current and new info you pass along to us.
--Pat Fury
Thank you for all you do! I always look forward to reading your articles.
--Linda Armas
Thanks for all the helpful info you post....!. I quit working 3 yrs ago and sold my home to move in with my mother (Alz, 87) and brother (Downs, 46) to become a 24/7 caregiver.
--Caring Daughter
Thanks once again for your amazing story, Bob - looking forward to more posts!
--Amanda
I have found your site to be an excellent resource for families looking for information. I appreciate all you do!
--Nancy Iannone, CarePath Senior Solutions
Just wanted to let you know how much I am enjoying the daily readings from your website. They are both informative and helpful. Thanks for the inspiration.
--Ginny Faw
I truly enjoy your posts!!!
--Beth T. Compton
I send all my heart and prayers to you! God Bless!
--Touchoflove Homecare
I very much enjoy your pieces, have learned and benefitted from what you share, and appreciate the service and support you are providing for those of us whose family members are living with Alzheimer's disease.
--Ann Norman, PhD, MSW, MPH
I can not thank you enough for all you do to help EVERYONE that is touched my this nasty disease. Either like me trying to live the best I can with Alzheimer's and the many millions of people working so hard as caregivers and the many loved ones who have some one with this disease, you are a very special person dedicating many hours with all your heart to do what you do. Thanks and God Bless
--Phil Reinoehl
I came across your website several months ago. Your insights and advice have been priceless. I would never have received the kind of information you provide from a doctor or a specialist.
--Christina Wallace
I've been at this job of caregiver for my mother for less than 3 months now, and I truly believe I would have gone nuts myself if it were not for you! Todays blurb was just what I needed to hear.
--Heather Hamilton
Thanks a million times over for what is happening here in the Reading Room. Thank you for your devotion and for your positive attitude. It is spreading! And thanks for sharing Dotty with us.... Be blessed.
--Kelly
Thanks for ARR. It is such a blessing for those of us who need all the help we can get concerning dealing with this awful disease. Take care of yourself. We need you. Our prayers for you and Dotty.
--Kathy
What a wonderful service you are providing for all of those affected by Alzheimer's. Thank you for your dedication. Your mother is a lucky woman to have you as her son!
--Anon
Thank you for starting this most wonderful and helpful site. It has helped me and my family so much and I can't thank you enough. I have listened to some of the videos and sat in front of my computer and cried, and other times sat and laughed. Thank you again.
--Marilyn Bodaness
Thanks for sharing all you do with us. I think you are amazing. I learn so many new things from looking here everyday!
--Krystal Morgan



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Bob DeMarco is the editor of the Alzheimer's Reading Room and an Alzheimer's caregiver. Bob has written more than 1,565 articles with more than 8,000 links on the Internet. Bob resides in Delray Beach, FL.
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