Oct 13, 2012

Twinkle Twinkle Little Star, I Look Up and There You Are

Twinkle, twinkle, little star,
How I wonder what you are!
Up above the world so high,
Like a diamond in the sky!
By Bob DeMarco
+Alzheimer's Reading Room

Twinkle Twinkle Little Star

Here in Delray Beach, Florida the sky is crystal clear on a good night.

Sometimes, I go out at night and look up at the stars. As my eyes begin to adjust to the darkness, I see hundreds, then thousands, then millions of stars. Everywhere I look, in every direction more and more stars.

When I look up at those stars I start to imagine them as Alzheimer's caregivers I know.

Subscribe to the Alzheimer's Reading Room
Email:

If I look way up north maybe I'll see readers from Minnesota, Michigan, or Canada. I can look straight west and I might see readers from Texas, California, or even as far away as Australia, New Zealand or India. To the east readers from the U.K., France, Spain and Italy.

If I look south and look hard I might even see Carlos Oliveira writing one of his gigantic long comments in Brazil.

We have caregivers from all over the world. Even from tiny places like Malta, Monaco, Trinidad and Tobago, and Aruba. The caregivers are everywhere.

They come here from more than 150 countries.

Somehow I imagine each and everyone of those stars as an Alzheimer's caregiver. All 35 million of them.
Then the traveller in the dark,
Thanks you for your tiny spark,
He could not see which way to go,
If you did not twinkle so.
I often wonder how the caregivers are doing? What are they doing right now? What are they feeling? Are they alone?
________________

Sometimes while looking at all those stars I begin to look at the space between the stars -- I call this the Blue Nowhere.

When I look at the Blue Nowhere, I begin to imagine all the persons suffering from Alzheimer's disease. The Blue Nowhere is very vast.

I imagine that there were stars where the Blue Nowhere is today. Some of those stars are burning out, so they are not bright enough to be seen with the naked eye. Some of those stars burned out, they are no longer there. The Blue Nowhere is very vast.
________________

I imagine my mother in the Blue Nowhere. But, never to be forgotten.
________________

Sometimes when I am out there I look at my watch -- 15 minutes. I start to look back and forth, back and forth. Stars, Blue Nowhere, Stars, Blue Nowhere....

I think in the last fifteen minutes about 13 people started their trip into the blue nowhere. 13 people are going to become stars.

Every 68 seconds someone is diagnosed with Alzheimer's disease, every 4 seconds worldwide. I really don't like to think about that for very long.

Twinkle, twinkle, little star,
How I wonder what you are!
Up above the world so high,
Like a diamond in the sky!
Twinkle, twinkle, little star,
How I wonder what you are!

When the blazing sun is gone,
When there's nothing he shines upon,
Then you show your little light,
Twinkle, twinkle, through the night.

Then the traveller in the dark,
Thanks you for your tiny spark,
He could not see which way to go,
If you did not twinkle so.

In the dark blue sky you keep,
And often through my curtains peep,
For you never shut your eye,
Till the sun is in the sky.

As your bright and tiny spark,
Lights the traveller in the dark,—
Though I know not what you are,
Twinkle, twinkle, little star.


Related Content
Bob DeMarco is the Founder and Editor of the Alzheimer's Reading Room (ARR). Bob is a recognized influencer, speaker, and expert in the Alzheimer's and Dementia Community Worldwide. The ARR Knowledge Base contains more than 4,000 articles. Bob lives in Delray Beach, FL.

Original content +Bob DeMarco , Alzheimer's Reading Room