Tuesday, August 14, 2012

About Alzheimer's Reading Room


The goal of the Alzheimer's Reading Room is to Educate and Empower Alzheimer's care partners, their families, and the entire Alzheimer's community.

In the Alzheimer's Reading Room (ARR), we offer "real life" solutions to problems that Alzheimer's caregivers face each day.

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Voted #1 by Healthline in the 25 Best Alzheimer's Blogs of 2012, 2013, 2014


Alzheimer's Reading Room

The ARR Intelligent Knowledge Base contains more than 4,900 articles. 


Information can be found by using the search box on the right hand side of every webpage. We add new information to the knowledge base every day.

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The Alzheimer's Reading Room is the number one source of life news for the entire Alzheimer's and dementia communities.

The site focuses on Alzheimer's disease and the art of Alzheimer's caregiving.

In the Alzheimer's Reading Room, we tackle real world problems and offer advice and solutions on issues like: repetitive questioning, challenging behavior, how to understand Alzheimer's disease, how to cope with the disease, and how to communicate effectively with a person living with dementia.

At its core the Alzheimer's Reading Room is about helping members of the Alzheimer's Community understand, cope, and communicate with persons living with Alzheimer's and related dementia.

We understand the most common problems like: wandering, urinary tract infections, incontinence, showering, toileting, dental care, driving, caregiver loneliness, nursing home selection, memory care facilities, treatments, medications, hospice, and managing expectations as the disease progresses.

We discuss issues that are important to Alzheimer's caregivers. We provide specific insight, advice, and solutions based on real life experience.

We have a growing number of Alzheimer's professionals that willingly share their intellectual capital, advice, knowledge, and experience.


Bob De Marco
Alzheimer's Reading Room

I started the Alzheimer’s Reading Room to keep track of the thousands of articles and many books I was reading about Alzheimer's disease.

Soon after I started the blog, I began to receive emails from Alzheimer's caregivers from all over the world. First an email here and there, and now thousands of emails.

I soon realized that Alzheimer's caregivers are often thrust into their role with little or no experience, training, or education about Alzheimer's disease. As a result, they are often overwhelmed and suffer from feelings of helplessness. Forty percent of Alzheimer's caregivers suffer from depression.

150 Million people have been touched by Alzheimer's disease, and 50 million are worried about Alzheimer's. Each day, 1,232 people are diagnosed with Alzheimer's disease.
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As others learned about the success I was having in caring for my mother they encouraged me to write more about our experiences and daily life. As it turned out, they learned right along with me. They also provided us with support and encouragement at difficult times.

Together we learned that persons living with Alzheimer's and related dementia are capable of more than we can imagine. Step by step we learned how to live a rich, fulfilling life.

Together we learned that there are good and effectively solutions to they typical problems that caregivers face each day. We now share that information for those who are new to Alzheimer's caregiving.

I learned from experience that  when I started to write about the "real world" experience of Alzheimer's on this blog, more people started to find us. Readers started to tell family, friends, support group members, and other interested parties about the Alzheimer's Reading Room.

We do not advertise or market our service, in spite of this The Alzheimer's Reading Room is growing fast. As it grows, so does the collective brain of the Alzheimer's Reading Room.

We encourage every single reader to comment or to share their experiences with us. On this blog we learn from each other.


Most importantly, we learn that we are not alone.

Our readers include some of the world's top scientists, clinicians, doctors, nurses, and professionals in the field. But mostly, the readers are caregivers searching for answers to every day problems.

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Facts

  • Voted #1 by Healthline in the 25 Best Alzheimer's Blogs of 2012, 2013, 2014
  • The Alzheimer's Reading Room was featured in the New York Times.
  • The Alzheimer's Reading Room has been featured on more than 71 television and radio stations.
  • The Alzheimer's Reading Room is the largest blog of its type (Alzheimer's) on the Internet.
  • The Alzheimer's Reading Room contains more than 4,900 articles in its knowledge base, and has over 350,000 links on the Internet.
  • Articles from the Alzheimer's Reading Room have been syndicated on Reuters, Fox News, the Wall Street Journal, Time Warner, Chicago Sun Times, Houston Chronicle, Livestrong, Cox News, and the Palm Beach Post and a growing number of impotant websites throughout the world.
  • More than 527 news sites, websites, and blogs link to the Alzheimer's Reading Room.
  • The Alzheimer's Reading Room was founded by Bob DeMarco.
  • After caring for his mother, who suffers from Alzheimer's, Bob realized there was a need for high quality information that could be used by Alzheimer’s caregivers to care for their loved one.
  • The Alzheimer's Reading Room has more than 19,101 subscribers, and averages over 125,000 unique readers each month.
  • The Alzheimer's Reading Room has grown every single day since January 1, 2010.

By Bob De Marco Alzheimer's Reading Room

8/2014