I have had to make up my own system of keeping track of most everything that goes on in my life. ....By Bob DeMarco
Alzheimer's Reading Room
Phil Reinoehl suffers from Alzheimer's disease. Here are some of his recent comments that appeared on the Alzheimer's Reading Room. These comments are enlightening and provide caregivers with some interesting insight.
Since I am living with this disease one day at a time, I have found that clock time really does not have any value like it did before I was diagnosed.
My sense of time just is not the same as it used to be. The more information that is made available to me, the more CONFUSED I get.
I have had to make up my own system of keeping track of most everything that goes on in my life.
I do not expect anyone else to understand what and why I do the things I do to keep my life as "normal" as possible.
A person without this disease (Alheimer's disease) can't make a system up for me to help me with each day. Their system would just cause more stress and confusion a lot more than it just being left for me to figure out.
I really think at time, caregivers over do trying to make things easier for a person living with this disease one day at a time. It just makes life more confusing.
One more thing, I AM NOT suffering, I still feel great and enjoy most everyday, just for today!!!
Phil also wrote:
I use the K.I.S.S. (Keep it Spiritually Simple) approach of what Alzheimer's is. It is a disease of the brain, an organ of the body. I DO NOT take the negative approach or to say how bad it is and how nasty it is.
I have never had any disease I have heard of that is wonderful or fun to have. It is what it is and the more we tell ourselves how rotten it is that we have this disease the worse it is to deal with.
I want to enjoy my life and it does not work to good if I keep telling myself how terrible it is to have this disease. The more I complain about it the worse my life will be.
When I came to the point of just having Faith and Trust about my future and Accept that I have this disease and have as good of an attitude that I can one day at a time, the better my life will be in living in harmony with this disease and NOT fighting it every day for the rest of my life.
I deserve to have the best life I can for how ever long that will be.
For some crazy reason my life is just as good as it can be just for today and I will keep on living this way as long as I am at peace and content.
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Bob DeMarco is the editor of the Alzheimer's Reading Room and an Alzheimer's caregiver. Bob has written more than 1,610 articles with more than 8,000 links on the Internet. Bob resides in Delray Beach, FL.
Original content Bob DeMarco, the Alzheimer's Reading Room