Oct 15, 2015

Alzheimer's Caregiving So Scary

When Alzheimer's strikes your heart, body, and mind go spinning out of control. Well, mine did.

By Bob DeMarco
Alzheimer's Reading Room

Dealing with anxiety and depression is one of the biggest problems that we face as caregivers

Someone once asked me, what is it like being an Alzheimer's caregiver? I answered, like getting hit in the back of the head with a tomahawk. The person just starred at me. Well, that is what it felt like to me at the time. They asked.

Learn - How to Understand the Difference Between Dementia and Alzheimer's Disease

Alzheimer's disease -- scary. Alzheimer's disease is hard to understand. Nearly impossible for many it seems. This explains, in part, why so many run for cover when they hear the word -- Alzheimer's.

Maybe they think Alzheimer's will jump on them if they get too close.

How can they understand? We see it, we live it day after day, and we still have difficulty understanding what is going on. What is going to happen next. Well, at least we are trying to understand and cope.

Sometimes they ask, what are THEY like. Let me explain it to you. No, better yet come and stay with us for a week and find out for yourself, first hand. Or, how about I send our loved one over to you for a week. Don't make plans, they might get sent back in two or three days. Don't despair, now they know.

Alzheimer's behaviors. Bizarre. Incomprehensible. Why? Why are they doing this -- stuff.

It is almost like you woke up one day and there was this whole new world. This new, different, and incomprehensible world -- Alzheimer's World.

Alzheimer's World seems at first like it is upside down and backwards. How am I suppose to think upside down and backwards?

Why is this person I know thinking upside down and backwards? Why?

Its just one thing after another. Doctor Doctor Doctor. Behavior Behavior Behavior. Anger Anger Anger. Confusion Confusion Confusion. Heartache Heartache Heartache. Stomachache Stomachache Stomachache. Spin Spin Spin. Out Out Out. Of Of Of. Control Control Control.


One thing that does help. Take a series of long deep breaths. Nice and slow.

In your nose, out your mouth. Deep, slow, easy. Stand up right now, and try it. Do it four times. Nice and slow and easy. Concentrate on your neck. Feel the stress flying out?

Alzheimer's disease is so complex, so hard to comprehend that it stands to reason that you have to be some kind of well educated super human to deal with it. Right?

I mean if it is that hard to understand it only stands to reason that it must be that much harder to deal with. Right?

Somehow we do it. Right?

Take a few deep breaths.

If not for you, who then?

Just a Word:
Friends Encounter Alzheimer's
Writing this reminded me about a book written by Rose Lamatt. A small but powerful book in my opinion. Here is an excerpt from my review.

As the Alzheimer's disease worsens in her good friend Carol, the action becomes almost frantic. I was surprised at how fast I was reading the words. The scenes were zooming by so quickly that I felt like I was in a car going 100 miles an hour.

Somehow the depiction of the characters became so real that I felt like I was standing in the corner of the room watching each scene play out. I could see the faces of the participants even though I had never met a single one of them.

The doctors, friends, support group members and Rose -- each and every one of them. They all had a body and a face.

To read my review go here. You should consider obtaining this book.

Related Content

What is the Difference Between Alzheimer’s and Dementia

Test Your Memory for Alzheimer's (5 Best Tests)

Communicating in Alzheimer's World

Alzheimer's, Your Brain, and Adaptability

The Seven Stages of Alzheimer's

Original content Bob DeMarco, the Alzheimer's Reading Room