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Wednesday, April 20, 2011

Tell Us an Alzheimer's Caregiver Story


This is a call for Alzheimer's caregiver stories. A little slice of your life. Here is a list of some of the stories that were submitted last year...
Bob DeMarco
Alzheimer's Reading Room

Alzheimer's Dementia Story
Last year we had quite a few Alzheimer's caregivers come in and tell us a story. I like these stories. This year, we are off to a slow start. I'm frustrated. Not in a bad way, in a "what am I gonna do kind of way".

When someone tells us a story, its uplifting. Makes us feel better. Reaffirms one of the most important things we need to know, we are not alone.

Last year, Barbara Pursley told us a story about "inappropriate sexual behavior". It happens. Maybe more than most of us think. Someone linked that story on to a message board. From time to time someone clicks the link and comes here. At the minimum they learn -- they are not alone. It happens. I bet that really helps them. Helps them right then, right there, when they need it the most. Alzheimer’s Disease and Inhibitions. Among a long list, Barbara also wrote, Embracing the Moment.

Karen Matthews came in told us about the Shop for Mom. Karen explained how with the help and encouragement of her husband she came to the realization that instead of being a “dream squelcher” it is more effective to be a dream maker. With a couple of tweeks here and there, a "shopper friendly' room was born.

Marty D told us about the difference between correcting her mother's misrepresentations and validation. Marty.

Donna McCullough a psychologist in private practice told us about the heart ache and pain in watching Pat’s decline. Caring From the Heart.

Donna Giovannetti told us about when her father was lost, and what she did to help find him. My Dad -- Missing and Found.

Debbie Schultz wrote, Sometimes It Just Takes A Good Cry.

Danielle Tessa Scott wrote, The Man Who Knew Me.

Lynn F. Walker wrote, Take ME... Take ME.

Viki Kind wrote, Fighting for Control.

Jane Henderson wrote, My Husband’s Surprising Response to Nursing Home Placement.

Carol Trickett told us about how she garnered the strength to care for husband. In Sickness and In Health.

Jane MacKenzie wrote, Caregiving Requires Observation and Good Intuition.

Judy Dearing told us about her own trial and tribulations, and then wrote, You Know I Don’t Work Puzzles. In that article Judy showed that sometime you have to be patient, and if you are you just might find out that "there is more there" than you think.

Linda Fisher wrote about Unconditional Love.

Sheryl Lynn wrote quite a few article. She shared her own angst and metamorphosis with us. The list includes, Keeping The Love Alive: Unexpected Comfort.

C J Pittsburgh did an interesting podcast and explained a day in the life of an Alzheiemr's caregiver in her own words. Getting Kay to the Doctor.

Kerry Runyeon wrote quite a few articles, some serious, some about problem solving, and some so funny they made my day. These included Lily's LuLu's. Ingenuity. Lily's LuLu's. One Bed.

I like all of Kerry's stories, but I laughed uproariously when Kerry described herself running around the house trying to get out the door, and then, she stepped in poop. I walk around here in my bare feet. I can assure you I have squashed an occasional "dingle berry", and discovered a new tributary of the yellow river with my feet. Of course, over time your learn how to be on the look-out for such things.

Surely, some of you have a story that sticks out in your mind. Something you learned, how you over came a problem, how you changed for the better, or how you solved a problem. Or, a moment in time when someone said something to you that woke you up to a new reality.

When You submit your article use the contact button in the upper right hand corner (on the navigation bar). Please try to remember to write "Article Submit" in the subject box of the email. You can also tell us a story in your own words using your own voice. If you would like to make a podcast let me know. It is simple, all you need is a telephone, I'll do the rest.

You can write under your own name, or you can submit an "anonymous" story.

Don't wait for someone else to do it, you do it.

Read More on the Alzheimer's Reading Room


Original content Bob DeMarco, the Alzheimer's Reading Room