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Thursday, July 7, 2011

Can you Help Me Help US


Normally at this time of day I would be putting the finishing touches on a new article so it publishes by 3 PM eastern time. That won't happen today.

By Bob DeMarco
Alzheimer's Reading Room

I have so much on my mind right now I am having difficulty sorting it out. So many things to do, not enough time. Maybe I should write a book, the 48 Hour Day.

How bad is it? Well it took me a day and a half to find Dotty's false teeth. Just solved that problem.

We have a very broad diversified audience here, and I could use your help.


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The first thing on my dream/wish list.

  • Doesn't someone in the audience have a "geek" in their family. A child or grandchild that knows a lot about how to make things work on the Internet. HTML, SEO, Facebook, those kinds of things. Don't worry if you don't know what those terms mean, ask your family "geek".

I needed a couple of talented young people to help me improve the Alzheimer's Reading Room and move it forward.

What I would really like is to find one or two people at Google, Inc that have been touched by Alzheimer's. Identify them and find out if they could spend a couple hours a week helping me and advising me.

The purpose of improvement by the way is so we can reach more Alzheimer's caregiver. Help them find us.

  • Here is the second thing on my list. I want to find more Alzheimer's caregivers to share their experiences with us. This falls under the all important category of letting every Alzheimer's caregiver know they are not Alone.

I can tell you this. There was a day when two people I had never met in my life listened to me vent. They then told me of their own round trip ride with Alzheimer's. Of the similarities in their experience to what I was experiencing right at the time.

Before I talked to them, I felt like that Charles Atlas guy with the world on his shoulders. A few hours later I felt the 1,000 pound boulder I had been carrying around on my shoulders disappear. I wouldn't be where I am today without that experience. I never saw them again after that day.

I would like more readers to write and tell us a story, an experience, or share some advice. You don't need to be Woodward or Bernstein to write for the Alzheimer's Reading Room. In fact, I would prefer if you write like you talk. Your story doesn't have to be long, or filled with all kinds of details. What would you ask in a support group? What would you say to someone in support group? Did you say something about dementia recently?

Are you feeling like you are one of the Forgotten? Why don't you tell us about it?

Tired of sitting in the Front Row all by yourself? Let it out, what you like to see change?

Feel like you need some help? Tell us what you need.

Dreaming about something you would love to have that might improve your life as an Alzheimer's caregiver? I'm listening. But I would rather read it or hear you say it in a podcast.

  • Podcast? I want each and every one of you to make a podcast. You write up a little story. Then I give you a phone number. You call the number and speak your story. Then you hang up and email me and tell me you did it. I do the rest.

Wouldn't you like to hear the voice of other caregivers, professionals, and members of the Alzheimer's community that come on to this site and comment?

Here is an example of a reader podcast by C J Pittsburgh. All she did was dial a phone number and speak into the phone when prompted. Go ahead and listen to, Getting Kay to the Doctor.




I would like to get hundreds of these types of podcasts from all sides of the Alzheimer's community.

And by the way, if you can make a YouTube video, shoot it in for publication here on the ARR.


Can you help me?