Bob DeMarco Alzheimer's Reading Room

Wednesday, July 13, 2011

How This Alzheimer's Caregiver Lives -- Vickie


Every morning, I pause when I walk in her room, say a prayer. I'm thankful when I see her breathing, I smile, tell her: "Mom, I'm your daughter." She smiles too.

By Bob DeMarco
Alzheimer's Reading Room

Yesterday, I wrote, How Do Alzheimer's Patients Die?

The comments under the article were interesting, thought provoking, and important.

As usual, I learned what I already know. Alzheimer's caregivers think and feel. Caregivers are on a mission.

For those of you that took the time to comment, thanks.

I thought you might find this comment by our reader Vickie of interest.

The comment made me feel an entire range of emotions, including sadness and joy.


Vickie wrote,

Bob, heartfelt article, thank you.

It will be almost 15 years Mom was officially diagnosed with dementia.

She does have difficulty swallowing and coughing. It does not happen everyday, but, it happens.

She sleeps a lot now. Some days she is more alert. Somedays 3-5 words, someday's nothing. She runs hot and cold.

The weight loss started about a year ago. As much as we have increased the protein intake, calorie intake, etc., there is no weight gain.

Every morning, I pause when I walk in her room, say a prayer. I'm thankful when I see her breathing, I smile, tell her: "Mom, I'm your daughter." She smiles too.

Hospice says: It's running it's course now, all we can do is make her comfortable. I just pray it's peaceful.

How will I feel.....very sad. All we had 15 years ago, prescription drugs. What do we have today..........NO survivors.

I thank God for strength to continue this journey with Mom everyday. I will be right by her side, holding her hand, just as my Mom was holding her Mom's hand when she passed away. I have never watched anyone pass away,

I pray "Lord Guide My Hand."

When we signed up for Hospice they gave us a pamphlet to read: Gone From My Sight; The Dying Experience by Barbara Karnes.

They suggested I read it, watch for the symptoms and be alert.

I reread it again last night. I will miss my best friend in life........

My Mom.




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Bob DeMarco is the Founder of the Alzheimer's Reading Room and an Alzheimer's caregiver. The blog contains more than 2,800 articles with more than 602,100 links on the Internet. Bob lives in Delray Beach, FL.







The Alzheimer’s Action Plan: The Experts’ Guide to the Best Diag­no­sis and Treat­ment for Mem­ory Prob­lems
 
The 36-Hour Day A Family Guide to Caring for People with Alzheimer Disease


Original content Bob DeMarco, the Alzheimer's Reading Room