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Wednesday, August 7, 2013

Alzheimer's Disease Research Centers are a Useful Tool for Alzheimer's Caregivers


The Alzheimer's Disease Research Centers around the country are an important source of information and help for Alzheimer's caregivers and their families.

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I often receive emails from readers asking me how to find someone that is experienced in the diagnosis of dementia, or searching for help on other Alzheimer's dementia related problems. When this happens, the first thing I do is ask them their location.

There are about 30 Alzheimer's Disease Research Centers (ADRC) around the country. When most people think ADRC they think research.

However, most ADRCs have doctors in practice, practicing neurologists, a long list of resources that can benefit caregivers and their families, and they can help identify additional resources that are available in your area.

The ADRC is a go to place for all Alzheimer's caregivers. Even if there is not one nearby, you can still call and ask for their help, guidance, and assistance.

Alzheimer's Disease Research Centers

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These centers can be very helpful to families, and I suggest if you have a problem or question you contact them.

Most of the doctors and scientists are affitiated with other medical institutions in their state. So even if the ADRC is not close by, but is in your state, they can be a great resource for referrals and information.

The map and list below has the location of the currently available ADRCs.

The National Institute on Aging funds Alzheimer’s Disease Centers (ADCs) at major medical institutions across the Nation . Researchers at these Centers are working to translate research advances into improved diagnosis and care for Alzheimer’s disease (AD) patients while, at the same time, focusing on the program’s long-term goal—finding a way to cure and possibly prevent AD.


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For patients and families affected by AD, the ADRCs offer:
  • Diagnosis and medical management (costs may vary—centers may accept Medicare, Medicaid, and private insurance).
  • Information about the disease, services, and resources.
  • Opportunities for volunteers to participate in drug trials, support groups, clinical research projects, and other special programs for volunteers and their families.
Some ADRCs have satellite facilities which offer diagnostic and treatment services and research opportunities in underserved, rural, and minority communities.

For more information, contact any of the centers in the directory below.

Arizona

Arizona Alzheimer’s Disease Center/Sun Health Research Institute
Eric Reiman, M.D., Director
Arizona Alzheimer's Disease Center
Banner Alzheimer's Institute
901 E. Willeta Street
Phoenix, AZ 85006
Website: www.azalz.org/
Information Line: 602-239-6500

California

University of California, Davis
Charles S. DeCarli, M.D., Director
Alzheimer's Disease Center
University of California, Davis Medical Center
4860 Y Street, Suite 3700
Sacramento, CA 95817-4540
Website: http://alzheimer.ucdavis.edu
Information Line: 916-734-5496


University of California, Irvine
Carl W. Cotman, Ph.D., Director
Alzheimer's Disease Research Center
University of California, Irvine
Gillespie Neuroscience Research Facility, Rm. 1113
Irvine, CA 92697-4540
Website: www.alz.uci.edu
Information Line: 949-824-5847

University of California, Los Angeles

John Ringman, M.D., Interim Director
Alzheimer's Disease Research Center
10911 Weyburn Avenue, Ste. 200
Los Angeles, CA 90095-1769
Website: www.EastonAD.ucla.edu
Information Line: 310-794-3665

University of California, San Diego
Douglas R. Galasko, M.D., Director
Alzheimer's Disease Research Center
Department of Neurosciences
UCSD School of Medicine
9500 Gilman Drive (0948)
La Jolla, CA 92093-0948
Website: http://adrc.ucsd.edu
Information Line: 858-622-5800

University of California, San Francisco
Bruce Miller, M.D., Director
Alzheimer's Disease Research Center
University of California, San Francisco, Box 1207
350 Parnassus Avenue, Suite 905
San Francisco, CA 94143-1207
Website: http://memory.ucsf.edu
Information Line: 415-476-6880

University of Southern California
Helena Chui, M.D., Director
Alzheimer's Disease Research Center
University of Southern California
Health Consultation Center
1510 San Pablo Street, HCC643
Los Angeles, CA 90033
Website: www.usc.edu/dept/gero/ADRC
Information Line: 323-442-7600

Florida

Florida Alzheimer’s Disease Research Center/Byrd Alzheimer’s Institute
Huntington Potter, Ph.D., Director
Florida Alzheimer's Disease Research Center
Byrd Alzheimer's Institute
4001 East Fletcher Avenue
Tampa, FL 33613
Website: www.floridaadrc.org
Information Line: 1-866-700-7773 (toll free)

Georgia

Emory University
Allan I. Levey, M.D., Ph.D., Director
Alzheimer's Disease Center
Wesley Woods Health Center, 3rd Floor
1841 Clifton Road
Atlanta, GA 30329
Website: www.med.emory.edu/ADC
Information Line: 404-728-6950

Illinois

Northwestern University
M.-Marsel Mesulam, M.D., Director
Cognitive Neurology and Alzheimer's Disease Center
Feinberg School of Medicine
Northwestern University
675 N St. Claire, Galter 20-100
Chicago, IL 60611
Website: www.brain.northwestern.edu
Information Line: 312-926-1851

Rush University Medical Center
David A. Bennett, M.D., Director
Alzheimer's Disease Center
Rush University Medical Center
Armour Academic Center
600 South Paulina Street, Suite 1028
Chicago, IL 60612
Website: www.rush.edu/radc
Information Line: 312-942-3333

Indiana

Indiana University
Bernardino Ghetti, M.D., Director
Indiana Alzheimer Disease Center
Department of Pathology and Lab Medicine
Indiana University School of Medicine
635 Barnhill Drive, MS-A-138
Indianapolis, IN 46202-5120
Website: http://iadc.iupui.edu
Information Line: 317-274-1590

Kansas

University of Kansas
Russell H. Swerdlow, M.D., Director
Alzheimer’s Disease Center
University of Kansas School of Medicine
Department of Neurology
2100 West 36th Ave, Suite 110
Kansas City, KS 66160
Website: www.kualzheimer.org
Information Line: 913-588-0555

Kentucky

University of Kentucky
Linda Van Eldik, Ph.D., Director
University of Kentucky Alzheimer's Disease Center
Sanders-Brown Center on Aging, Rm. 101
800 South Limestone St.
Lexington, KY 40536-0230
Website: www.centeronaging.uky.edu
Information Line: 859-323-6040

Maryland

The Johns Hopkins University
Marilyn Albert, Ph.D., Director
Alzheimer's Disease Research Center
Division of Neuropathology
The Johns Hopkins University Medical Institutions
558 Ross Research Building
720 Rutland Avenue
Baltimore, MD 21205-2196
Website: www.alzresearch.org
Information Line: 410-502-5164

Massachusetts

Boston University
Neil William Kowall, M.D., Director
Alzheimer's Disease Center
VA Boston Healthcare System
Neurology Service (127)
150 South Huntington Avenue
Boston MA 02130
Website: www.bu.edu/alzresearch
Information Line: 1-888-458-2823 (toll free)

Massachusetts General Hospital/Harvard Medical School
Bradley T. Hyman, M.D., Ph.D., Director
Alzheimer's Disease Research Center
Massachusetts General Hospital
114 16th Street, Room 2009
Charlestown, MA 02129
Website: http://madrc.org
Information Line: 617-726-3987

Minnesota

Mayo Clinic
Ronald Petersen, M.D., Ph.D., Director
Alzheimer's Disease Research Center
4111 Highway 52 North
Rochester, MN 55901
Website: http://mayoresearch.mayo.edu/mayo/research/alzheimers_center
Information Line: 507-284-1324

Missouri

Washington University
John C. Morris, M.D., Director
Alzheimer's Disease Research Center
Washington University School of Medicine
Department of Neurology
4488 Forest Park Avenue, Suite 130
St. Louis, MO 63108-2293
Website: http://alzheimer.wustl.edu
Information Line: 314-286-2881

New York

Columbia University
Michael L. Shelanski, M.D., Ph.D., Director
Columbia University Alzheimer's Disease Center
630 West 168th Street, P&S 15-402
New York, NY 10032
Website: www.alzheimercenter.org
Information Line: 212-305-2077

Mount Sinai School of Medicine
Mary Sano, Ph.D., Director
Alzheimer's Disease Research Center
Department of Psychiatry
Mount Sinai School of Medicine
One Gustave Levy Place, Box 1230
New York, NY 10029-6574
Website: www.mssm.edu/research/centers/alzheimers-disease-research-center
Information Line: 212-241-8329

New York University
Steven H. Ferris, Ph.D., Director
NYU Langone Medical Center
Center of Excellence on Brain Aging
145 E 32nd St, 5th Floor
New York, NY 10016
Website: www.med.nyu.edu/adc
Information Line: 212-263-8088

North Carolina

Duke University Medical Center
Kathleen A. Welsh-Bohmer, Ph.D., Director
Joseph and Kathleen Bryan Alzheimer's Disease Research Center
2200 West Main Street
Suite A-200
Durham, NC 27705
Website: http://adrc.mc.duke.edu

Oregon

Oregon Health and Science University
Jeffrey Kaye, M.D., Director
Aging and Alzheimer's Disease Center CR 131
Oregon Health and Science University
3181 SW Sam Jackson Park Road
Portland, OR 97239-3098
Website: www.ohsu.edu/research/alzheimers
Information Line: 503-494-6695

Pennsylvania

University of Pennsylvania
John Q. Trojanowski, M.D., Ph.D., Director
Alzheimer's Disease Center
Department of Pathology and Laboratory Medicine
University of Pennsylvania School of Medicine
HUP, Maloney 3rd Floor
36th and Spruce Streets
Philadelphia, PA 19104-4283
Website: www.uphs.upenn.edu/ADC
Information Line: 215-662-7810

University of Pittsburgh
Oscar Lopez, M.D., Director
Alzheimer's Disease Research Center
University of Pittsburgh
Department of Neurology
3501 Forbes Ave, Ste 830
Pittsburgh, PA 15213
Website: www.adrc.pitt.edu
Information Line: 412-692-2700

Texas

University of Texas, Southwestern Medical Center
Roger N. Rosenberg, M.D., Director
Alzheimer's Disease Research Center
Department of Neurology
University of Texas SW Medical Center
5323 Harry Hines Boulevard
Dallas, TX 75390-9129
Website: www.utsouthwestern.edu/alzheimers/research
Information Line: 214-648-9376

Washington

University of Washington
Murray Raskind, M.D., Director
Alzheimer's Disease Center
VA Puget Sound Health Care System
S-116 6 East
1660 S. Columbian Way
Seattle, WA 98108
Website: http://www.uwadrc.org/
Information Line: 1-800-317-5382

Wisconsin

University of Wisconsin
Sanjay Asthana, MD, Director
University of Wisconsin Alzheimer's Disease Center
2500 Overlook Terrace
GRECC 11G
Madison, WI 53705
Website: www.wcmp.wisc.edu
Information Line: 1-866-636-7764 or 608-256-1901 x12921

Alzheimer's Disease Cooperative Study (ADCS)
The ADCS conducts clinical trials on promising compounds designed to improve cognitive functioning, slow the rate of decline, or delay the onset of Alzheimer's disease.

University of California, San Diego
9500 Gilman Drive - 0949
La Jolla, CA 92093-0949
Website: www.adcs.org
Information Line: 858-622-5880


Alzheimer's Disease Education and Referral Center
The Center provides information, free publications, and referrals.

PO Box 8259
Silver Spring, MD 20907-8250
Website: www.nia.nih.gov/Alzheimers
Information Line: 1-800-438-4380 (toll free)

National Alzheimer's Coordinating Center
The Center coordinates data collection and fosters collaborative research among ADCs.

Walter Kukull, Ph.D., Director
National Alzheimer's Coordinating Center
4311 11th Avenue NE, #300
Seattle, WA 98105
Website: www.alz.washington.edu
Information Line: 206-543-8637

More information - http://www.nia.nih.gov/alzheimers/alzheimers-disease-research-centers

Original content Bob DeMarco, the Alzheimer's Reading Room