Nov 12, 2011

No One Wants My Sick Darling Dad

If he had cancer, had suffered a stroke or a heart attack there’d be a whole pool of care and sympathy, but with Alzheimer’s there is still a gross lack of ­understanding, resulting in the sufferer, not the disease, being blamed for ­uncontrollable behaviour.

Alzheimer's Reading Room

Fiona Phillips with her father
No one really wants dad now, apart from us, his family, who lack the space, the time and, to be truthful, the heart to have him with us, knowing that his disease will ­eventually drive us all insane, no matter how much we love him.

It is a guilt that accompanies me wherever I go, having also had to resort to professional care for my mother who died of early-onset Alzheimer’s.

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Original content Bob DeMarco, the Alzheimer's Reading Room