Jan 23, 2012

Alzheimer's in the Year 2025, or I Can't Believe Its Yogurt

We need a real plan to keep persons living with Alzheimer's at home without bankrupting their spouses.

By Bob DeMarco
Alzheimer's Reading Room

It appears there is a great deal of dissatisfaction with the recently released Draft Framework of the National Plan to Address Alzheimer's Disease. The actual Plan should be forthcoming in May.

The draft describes itself as a framework  structured around five ambitious goals:

  • Prevent and Effectively Treat Alzheimer's Disease by 2025.
  • Optimize Care Quality and Efficiency.
  • Expand Patient and Family Support.
  • Enhance Public Awareness and Engagement.
  • Track Progress and Drive Improvement.

I have a first important question. Where is the money coming from to finance this ambitious plan?

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It is not unusual for a family to go broke while caring for a person living with Alzheimer's. This usually means Medicaid. Where is the money coming from to fund Medicaid for Alzheimer's patients? Correct me if I am wrong. Aren't we in the process of cutting funding for Medicare and Medicaid?

Does the committee know how many spouses exhaust all their savings, sell or lose their home, and end up "dead stone broke" themselves while caring for a person living with Alzheimer's?

Are we expecting them to go homeless and live under a bridge or in a tent city? Any actual plan to address this issue?

We need a real plan to keep persons living with Alzheimer's at home without bankrupting their spouses or families. Should we wait until 2025 to do this?

How did the committee arrive at the target date 2025 to "Prevent and Effectively Treat Alzheimer’s Disease"? Ouija board? Dart board? Where is the money coming from? If we can do it by 2025, what would it take to do it by 2020?

On Wednesday, January 25, at 1:00 pm EST, the Cure Alzheimer's Fund is hosting an open webinar, Two Sides of Abeta for the Layperson.

The webinar is open to readers of the Alzheimer's Reading Room, and anyone can attend via their computer.

If all goes well, you will be able to ask a question. Previously we published a podcast, The Plan to End Alzheimer's Disease by 2020. We obtained this podcast from Dr Rudy Tanzi. Rudy is a host of the webinar.

If you are little angry, and if you are looking for some answers, I suggest you attend the Cure Alzheimer's Fund webinar, and try to put in your two cents in the form of a question about treatments and a cure for Alzheimer's

At the end of the day, it is going to be up to us to do something about this. I'll write more about that at another time.

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Bob DeMarco is the Founder of the Alzheimer's Reading Room and an Alzheimer's caregiver. The blog contains more than 3,261 articles with more than 402,100 links on the Internet. Bob lives in Delray Beach, FL.

Original content Bob DeMarco, the Alzheimer's Reading Room