By Marie Marley
Alzheimer's Reading Room
My purpose was to chronicle the relationship and share it with the public.
The book narrates the story of our early romantic years together, including Ed's quintessential old-school European manners, our subsequent decades-long relationship as soul mates, and our eventual triumph over his Alzheimer's.
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Come Back Early Today does not give advice to caregivers. But it does illustrate how Ed's disease progressed and how I dealt with the numerous issues that typically arise when caring for someone with Alzheimer's.
So you can imagine my surprise when most of the book's reviewers focused heavily on the parts that describe how I cared for Ed when he had dementia. It shows how I managed everything from denial, getting a diagnosis, convincing him to go to a long-term care facility, arranging for a DNR (do not resuscitate) order, to end-of-life issues care issues and hospice considerations.
Consequently, I reduced the number of articles I wrote about the relationship for the Huffington Post and the Alzheimer's Reading room and began writing more articles about dementia caregiving.
One day I unexpectedly received a letter from a Cape Coral woman whose husband has Alzheimer's.
"The main reason I am writing is to tell you how much I liked your book. Since my husband was diagnosed [with Alzheimer's] I have read many books, attended some courses and joined a support group. Your book is the only one that gave me hope."That's when I realized I had accidentally written an important resource for Alzheimer's caregivers that also includes a love story rather than a love story that just happens to illustrate solutions to several dementia caregiving issues.
I'm still intrigued (and gratified) by the unexpected responses to my memoir.
A slightly different version of this article was published on the Huffington Post.
Come Back Early Today:
Marie Marley, PhD, is the award award winning author of, Come Back Early Today: A Story of Love, Alzheimer’s and Joy. You can visit Marie’s website at ComeBackEarlyToday.
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