Dec 16, 2013

Lewy Body Dementia - New One of a Kind Educational Publication

Lewy body dementia (LBD) is a complex, challenging, and surprisingly common brain disease. Although lesser known than its “cousins” Alzheimer’s disease and Parkinson’s disease, LBD is not a rare disorder.


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Lewy body dementia (LBD) is a complex disease that affects the brain in ways that scientists are still trying to understand.

It is challenging because its symptoms make it hard for persons living with LBD to do everyday tasks that once came easily.

Although less well known than its “cousins” Alzheimer’s disease and Parkinson’s disease, LBD is not a rare disorder.

More than 1 million Americans, most of them older adults, are affected by its disabling changes -- including the ability to think and move.

People with LBD and their families struggle day to day to get an accurate diagnosis, find the best treatment, and manage at home.

A new informational booklet on Lewy body dementias has been published by the National Institutes of Health for people living with LBD, their families and healthcare providers.

To get this new, free, booklet in PDF format; or, to order a free copy at the NIH website click the link.

“This publication signifies a major milestone Lewy body dementias,” stated Angela Taylor, Director of Programs at the Lewy Body Dementia Association. “To my knowledge, it is the first educational publication on LBD by any federal agency. We applaud the commitment that NIA and NINDS have shown to provide resources about Lewy body dementias and place vital information in the hands of LBD families and their healthcare providers.”
The booklet was a collaboration among the Lewy Body Dementia Association (LBDA), the Shiley-Marcos Alzheimer’s Disease Research Center at the University of California, San Diego, the National Institute on Aging (NIA) and National Institute of Neurological Disorders and Stroke (NINDS).

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Original content Bob DeMarco, the Alzheimer's Reading Room