Jan 26, 2015

Alzheimer's They Won't Know You

After an incredible outpouring of emotions the caregiver experiences an immediate sense of relief that they are not alone.

By Bob DeMarco
+Alzheimer's Reading Room

In a series of articles I asked Alzheimer's caregiver a simple question that could be defined this way --

Will persons living with Alzheimer's become an empty shell?

Alzheimer's They Won't Know You | Alzheimer's Reading Room


Subscribe to the Alzheimer's Reading Room
Email:

By this I mean
  • Will they forget you?
  • Become a shell of themselves?
  • Become unable to communicate in any way, shape, or form?
Ouch, the last one hurt when I typed it.

Back in 2005 after my awakening, after my incredible moment of inspiration, I started writing down all the bad things that I thought could happen with Dotty and me.

I did this with the express intention of getting myself mentally prepared for the day(s) when the bad stuff would happen. Mentally prepared in advance.

These led me to write a series of articles I later republished (several times) here on the Alzheimer's Reading Room.

One of my most important articles I ever wrote, at least in terms of the emotional response it received, was entitled


This article received some of the most heart wrenching and gut wrenching emails I ever received here on the ARR. New emails continue to come in from newly born caregivers that find the article via search, support groups, or social media.

It still amazes me when a caregiver that has been forgotten, or abandoned, reads the article and then after an incredible outpouring of emotions, experiences an immediate sense of relief that they are not alone.

We the caregivers are every where. Even though as dementia caregivers we often become invisible.

 I also wrote

which was about how lonely it can get sitting in the front row all by yourself as a caregiver; and, how difficult it can be.

I thought some of the family members and friends of dementia caregivers would read it and rally to the aid of the caregiver. It has not worked as well as I had hoped.

Which brings us to the point of this article.

Are you worrying or thinking about the day when your loved one will no longer know or recognizing you?

Are you trying to deal with this issue and get mentally prepared in case it happens to you?

What advice, suggestions, or insights can you share with other Alzheimer's caregivers?

___________________________________

Related Content
___________________________________
+Bob DeMarco is the Founder of the Alzheimer's Reading Room (ARR). Bob is a recognized writer, speaker, and influencer in the Alzheimer's and Dementia Community worldwide. The ARR Knowledge Base contains more than 4,900 articles. Bob lives in Delray Beach, FL.
You are reading original content Bob DeMarco, the Alzheimer's Reading Room