The Emotional Journey of the Alzheimer's Family is self described as:
An empathic and clear-eyed discussion of the emotional journey of family and friends who care for people with progressive forms of dementia
Peter Rabins, MD, professor of psychiatry and behavioral sciences, at the Johns Hopkins School of Medicine wrote:
“Much has been written about Alzheimer’s disease and the family, but surprisingly little has been said about the emotional journey along which people travel from the early symptoms of the disease to its ultimate ending in death.
In The Emotional Journey of the Alzheimer’s Family, Santulli and Blandin address these struggles and triumphs in a straightforward and accessible way. People with early dementia, family care providers, and health-care professionals will all gain from the wisdom they provide.”
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Robert Santulli and Kesstan Blandin have written an important book.
In this book Santulli and Blandin navigate the complex journey of feelings including anger and defense mechanism. They address the issues of anxiety, guilt and grief. They explain the process of adapting and acceptance; and, provide insight on how to understand and cope with the disease.
The topics the authors cover include:
- The Importance of Understanding the Family's Emotional and Psychological Experiences
- Coping with Discordant Views of the Illness
- The Defenses of Alzheimer's Family Care Partner
- Common Emotions Experiences by the Family Care Partner
- Understanding Grief in the Family Care Partner
- Stages of Grief in the Family Care Partner
- Acceptance and Moving Forward
- Connecting with the Alzheimer's Community
- and, Understanding and Coping with Stress
By Bob DeMarco Alzheimer's Reading Room
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