Dec 6, 2015

New York Chapter Breaks Away from Alzheimer's Association and Decides to Get Back to Their Roots

In a move than can only be describes as "courageous", New York City's leading experts in Alzheimer's care, education and support announced that the organization is separating from the Alzheimer's Association.

New York Chapter Breaks Away from Alzheimer's Association |

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The Mission
  • The mission of Alzheimer’s Disease and Related Disorders, New York City, Inc.* is to create and promote comprehensive and compassionate care for persons with Alzheimer’s disease and related dementia,
  • to provide support for their families and professional caregivers, and to eliminate Alzheimer’s disease through the advancement of research.
The organization intends to meet this mission in the community through increasing public awareness, providing education, creating and encouraging replication of model programs, collaborating with research centers, and undertaking advocacy.

Formerly known as the Alzheimer's Association, New York City Chapter, the nonprofit has been operating for 30 years, and has 60 employees. They will temporarily be known by their legal name, Alzheimer's Disease and Related Disorders, New York City, Inc., until they unveil a new name and logo February.

The disaffiliation comes after the Alzheimer's Association made the decision to restructure the organization and combine all of its local chapters into one single 501(c)(3) organization – in essence, a single charity.

The New York City Chapter (the Board) believed that the significant structural change would severely and adversely affect its ability to provide the same quality and level of service which has benefited New Yorkers for more than 30 years. 

Decisions and control of vital programs would have been turned over to Chicago and taken out of local hands. Importantly, this would have lead to dissolution of  the New York Board of Directors.
Lou-Ellen Barkan, President and CEO said,

"I want to assure New York City's Alzheimer's community and all of our clients, partners, supporters and friends that nothing will change except our name. There will be no disruption of service. It will be business as usual. We will remain the premiere organization in New York City singularly focused on care and support for individuals with Alzheimer's and related dementia and their families. 
New Yorkers will be able to rely on the same high quality service they have come to expect."
Barken added,
"This organization is the nation's model for innovative, creative and leading-edge caregiving. We are dedicated to delivering human-centered care to the heart of our diverse New York communities.  
We help caregivers and people living with dementia have full and meaningful lives. And, in the absence of effective therapies and a cure, the best therapy – the only therapy – is good care ... and this is where we excel."

Note to readers of the Alzheimer's Reading Room.

I took a quick look at the financials of Alzheimer’s Disease and Related Disorders, New York City, Inc. and they are in good shape right now.

However, they will clearly need additional support to continue their mission as a "stand alone, localized" support system for the Alzheimer's and Dementia Community.

You can help by donating direct.

In addition, I want to make it clear that I respect and admire all the volunteers that give so generously of their time and effort while working in the Alzheimer's Association. However, I support the localization of care and support; and, have been hoping to see this for some time.

Focused, localized support could very well lead to organizing the Community into a more "vociferous" group designed to capture the attention of politicians, and "force" them to understand we need more help.

About 72 percent of all voters have been touched by Alzheimer's or a related dementia. We need to start organizing and voting as a group. We need to be more like other disease groups that are receiving greater funding, and particularly greater investment from the government for treatment and cures.

Right now we, the Alzheimer's community, are too fragmented. This must end. We must work together and assert ourselves. The best way to do this is from the grass roots of each and every community around the United States.

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