Aug 17, 2017

Why Do People Living with Alzheimer's Want to Go Home?

Do Alzheimer's patients want to go home? Or are they longing for a time and place when they were safe and secure and knew everyone's name and face?


Most Alzheimer's patients want to go home, Why?
By Bob DeMarco
Alzheimer's Reading Room

My mother repeatedly said she wanted to move back home to a place where she had not lived for over 60 years - South Philadelphia.


The sound of her voice, the look on her face, the look of confusion and longing, often made me feel deeply sad.

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Saying I want to go home, to a place from the past, is a common occurrence among the deeply forgetful (people living with Alzheimer's or a related dementia). It happens to most of us.

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When my mother first started saying, I want to move back to south Philly I really couldn't understand why. But she said this most nights (around 9 PM) for several years. Once I made my way into


I started asking myself, Why?

Why did Dotty want to go back to a place where she had not lived since the 1940s.

Why?


I finally concluded over time that my mother was really looking for the comfort and security she experienced while living with her parents, and living in a safe secure place surrounded by people, places, and faces she knew.  Family, close relatives, close friends.

I understood that Dotty's short term memory was gone.

I think this is one of the keys to understanding dementia. The ability to retain new memories was gone. Dotty couldn't remember -- right now.


However, Dotty's long term memory was still fully intact.

Mom where did you go to first grade? Saint Monica's she told me. By the way, that was in 1922. My mom remembered 1922 in south Philadelphia

One day she told me about how she use to ride on the truck with her father, and how his customers would give her candy. And then she told me something I had never heard before. The truck her father was driving was pulled by a horse. The engine was a horse. That story made me happy. The experience she was describing happened in the 1920s. My mom remembered south Philadelphia.


Dotty could sing the words to songs. She once sang a song I had never heard before in my life -- Ghost of a Chance. This song was first made popular in 1932.

So, I finally concluded, after asking myself why, that Dotty was longing for a time that remained fresh and understandable in her mind.

A time when she was safe and secure and knew every one's name and face.

I decided right then and there that I would make our home in Delray Beach, FL the safest, most secure place that Dotty ever lived.

I started putting my arm around my mother's shoulders, I rubbed my cheek on her cheek, and I started telling her how wonderful a place, and what a safe place Delray Beach was - and how lucky we were to live here.



I didn't wait until she told me she wanted to go home to do this. I did this during the day to reinforce her.

When Dotty would say she wanted to go home I would respond directly, and say,

I don't want you to go anywhere, I want you to stay here with me, it's you and me now.


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It took a while but eventually Dotty started making that little Dotty smile, and said, okay.

It takes a while to imprint something into the mind of a person living with dementia. You have to keep trying and be patient. I somehow convinced my mother she was home. She stopped asking to go back to south Philadelphia. My mother was finally home.


An experience like this one can fill an Alzheimer's caregiver heart with great joy.


I understand that for those of you with a loved one living in a nursing home the situation is somewhat different. You will have to tailor your words to the situation. However, please understand this. It is the feeling, the warmth of your words, and the reassurance you are conveying that will make the person living with dementia stick to you like glue.


You might also try stating clearly and concisely that the thought of them living far away from you makes you sad, and you want them near you.

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Bob DeMarco is the Founder and Editor of the Alzheimer's Reading Room (ARR). Bob is a recognized influencer, speaker, and expert in the Alzheimer's and Dementia Community Worldwide.

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"I now include the Alzheimer's Reading Room in my list of caregiver resources for every dementia patient I work with. My colleagues are doing the same. The ARR is a fantastic resource. The writing is clear and jargon-free. The many experts who contribute to this site also keep the content up-to-date and useful." 
Rita Jablonski, Director, National Hartford Center of Geriatric Nursing Excellence at UAB