Sep 6, 2016

First Ever Clinical Trial for Dementia with Lewy Bodies (DLB)

The only way to find an effective treatment for Alzheimer's disease or any related dementia is through greater participation of caregivers in clinical trials. The only way.


Clinical trial for Lewy Body dementia.
By Bob DeMarco
Alzheimer's Reading Room

This clinical trial is no longer accepting new patients.



The fact. No new drug can be approved until a Phase 3 clinical trial is completed. Then and only then, can the results be submitted to the FDA for approval of a new drug or medication.

All of the existing and open clinical trials for Alzheimer's have been searching for eligible participants for years. Years.

Greater participation by caregivers and their loved one is the only way to shorten the path to approval for an effective treatment of Alzheimer's or Lewy Body dementia.

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Lewy Body dementia patients:

  • tend to be younger than those with Alzheimer's,
  • deteriorate more quickly,
  • develop extreme symptoms like hallucinations,
  • and, experience violent nightmares early in the disease process.
LBD affects an estimated 1.4 million individuals and their families in the United States.

How to Get Answers To Your Questions About Alzheimer's and Dementia

I can't say what this feels like because I never experienced these symptoms first hand as a caregiver for my mom. I do know they are gut wrenching, disconcerting, hard to deal with, and sometimes heart breaking.

What is Lewy Body Dementia (LBD)?

Lewy Body Dementia or Alzheimer’s Disease?

Lewy Body Dementia Association

You’ve Been “Forgotten” and What to Do About It | Alzheimer's Reading Room


Bob DeMarco is the Founder of the Alzheimer's Reading Room (ARR).

The Alzheimer's Reading Room contains more than 5,000 articles and has been published daily since July, 2009.

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