Showing posts with label Hospice Care. Show all posts
Showing posts with label Hospice Care. Show all posts

Apr 19, 2017

How to Select the Best Hospice Care Provider

The website of the National Hospice and Palliative Care Organization defines hospice care as follows:


Hospice services are provided in the patient’s home, assisted living facilities, nursing homes, hospital hospice units, or free-standing hospice facilities

“Considered to be the model for quality, compassionate care for people facing a life-limiting illness or injury, hospice care involves a team-oriented approach to expert medical care, pain management, and emotional and spiritual support expressly tailored to the patient's needs and wishes.


Support is provided to the patient's loved ones as well. At the center of hospice and palliative care is the belief that each of us has the right to die pain-free and with dignity, and that our families will receive the necessary support to allow us to do so.”



Mar 31, 2017

When Is the Best Time to Start Hospice Care?

Hospice provides compassionate care for people facing an end of life illnesses or injury.


Hospice care is for people with a life expectancy of 6 months or less

Hospices use a team-oriented approach to medical care, and pain management. Hospice care also provides emotional and spiritual support tailored to the needs of both patient and family caregiver.


Many people think of hospice care as something provided to people who have terminal cancer or another such illness. Hospice can also be immensely helpful for people living with Alzheimer’s.


Dec 11, 2016

Is Hospice Care an After Thought in Dementia Care?

For many dying seniors Hospice care (palliative care) happens only as an afterthought.


Hospice, dementia care, and Alzheimer's care.
By Bob DeMarco
Alzheimer's Reading Room

I wonder how many dementia caregivers really understand Hospice? How many take the time to plan well in advance for the utilization of Hospice?

The evidence seems to indicate not many.

Do you know how Hospice works? Have you discussed Hospice care with your doctor? Do you and your doctor have a plan in place to utilize Hospice?


Dec 7, 2016

Alzheimer's Care Killing our Parents with “Kindness”

We were proud of the fact that we had managed to honor our promise to never put her in a nursing home; and that, she was still able to continue living with dignity in her own home.


We honored our promise to her never put her in a nursing home | Alzheimer's Reading Room
By Shira Sebban
Alzheimer's Reading Room

“Who authorized this patient to be administered morphine?” The hospital geriatrician’s voice was stern as he addressed the staff clustered around my mother’s bed. “She’s for active care, not for palliative care – she’s going home!”



Oct 21, 2016

My Hospice Care Experience

Hospice care is designed to bring the highest quality of life to persons that are living with a serious illness, and are often close to death.


Hospice care is designed to bring the highest quality of life to a persons that is close to death.
Bob DeMarco
Alzheimer's Reading Room

There is a common notion that Hospice helps people die. I don't see it that way.

Both of my parents, Frank and Dotty, died at home in their bedroom with the assistance of Hospice by the Sea, Boca Raton, Florida.

Hospice did not help my parents to die, they helped them live to the very end of their life with dignity and compassion.

Hospice accomplishes their mission of palliative care with a coordinated team of healthcare professionals. Hospice palliative care is designed to bring the highest quality of life to persons that are living with a serious illness, and are often, but not always, close to death.

3 Questions Every Alzheimer’s Caregiver Should Ask About Palliative Care


Apr 19, 2015

6 Issues While Preparing Emotionally for Hospice Care

Many painful emotional issues face family members and friends when a loved one becomes terminally ill. One of them is the issue of accepting and seeking Hospice care.

Hospice Care | Alzheimer's

Emotional issues include:
    1. communicating the terminal diagnosis to others; 
    2. overcoming denial that the person is, in fact, near death; 
    3. feeling the need to "be strong" and hide their sadness for the benefit of the patient and others;
    4. dealing with anticipatory grief; 
    5. handling the physical and emotional exhaustion of intensive caregiving; 
    6. and deciding when or whether to engage hospice care services.

Aug 13, 2014

Palliative Care Is Not Hospice

This is truly great information that the public needs to know! - Carole Larkin

Alzheimer's Reading Room

For Your Information

Carole Larkin found this information of importance and wants to share this with the entire elder care, and Alzheimer's dementia community.
Dr. Robert Fine has a story he tells to serve a pair of purposes:

One, it illustrates how the palliative care program he leads at Baylor differs from hospice care. 
Two, it shows how new the specialty is, so fresh that a real-life incident can modify the specialty itself. 
Palliative care  is a personalized end-of-life support program that designs a personalized treatment strategy to help the patient live out their waning months or years how they want to.

It also extends to the family members, offering social workers and chaplains as resources to help process losing a loved one.

Continue reading and learn more - http://bit.ly/1prJ4Qu

Mar 10, 2014

The Distressing Decision to Order Hospice Care for a Person Living with Dementia

What are the signs and symptoms that a person living with Alzheimer’s disease is eligible for hospice care?

Marie Marley
Alzheimer's Reading Room

What happens when your loved one is ready for hospice care but you aren’t?

Angel in Heaven

I’d like to share my personal experience with this situation with you.

Custom Search - Hospice Care


Feb 15, 2014

My Mom is Not Eating

My mom is not eating, she is screaming and is sleeping a lot. Is there anyway to tell when she is close to the end?

Bob DeMarco
Alzheimer's Reading Room

Under the article, The Alzheimer's Reading Room Knowledge Base, our reader Sharon left the following comment.
My mom is not eating , she is screaming and is sleeping a lot she is in a nursing home but I am bringing her home hoping this will help her feel safe. 
Is there anyway to tell when she is close to the end?  I am trying to give a peaceful and happy rest of her life.  
There are times I just can't wrap my head around this, how someone can be ok one day and not the next. 
I have had my mom for 7 years and am glad I have this time with her but it is hard to see her like this.

Oct 4, 2013

My Hospice Care Decision for Dotty

Hospice allows a person who is critically ill to live their life to the end with compassion, great care, and dignity.

By +Bob DeMarco
+Alzheimer's Reading Room 



Previously I wrote - Is Hospice Care an After Thought?

In the comments section under the article our reader Judy K asked:
Bob --

Thanks for referencing the excellent article about Hospice utilization. Can you give us a little more detail about your statement, "There were two times when I thought it might be necessary for me to utilize Hospice to help care for Dotty. Two false alarms. She bounced back.

The third time there was no doubt - it was time for Hospice. Did you make the decision about "false alarm" or did hospice? I ask because I have had more than one doctor refer my husband to Hospice only to have the Hospice evaluating nurse say he did not qualify." Do you know if this is common?
This is an excellent question and gives me the opportunity to share my own experience with you.

You can click on the links as you read this article to get additional information, or follow the links under "Related Articles" for more information on Hospice and my experience with Dotty.

Nov 25, 2012

When Your Loved One Is Ready for Hospice Care – And You Aren't

“You know, Marie, the real question for the caregiver is how to help the patient have the highest possible quality of life in the time that is remaining.”

By Marie Marley
Alzheimer's Reading Room

I did eventually overcome my denial and decided to call hospice.

Many painful emotional issues face family members and friends when a loved one becomes terminally ill.

Custom Search - Touch and Kindness in Dementia Care


Nov 4, 2012

Medicare Barriers to Hospice Increase Hospitalization for Nursing Home Residents

Because of a Medicare policy that prevents simultaneous reimbursement for skilled nursing and hospice care, many families cannot choose hospice for loved ones who reside in nursing homes.

Alzheimer's Reading Room

Medicare Barriers to Hospice Increase Hospitalization for Nursing Home Residents
A Medicare rule that blocks thousands of nursing home residents from receiving simultaneous reimbursement for hospice and skilled nursing facility (SNF) care at the end of life may result in those residents receiving more aggressive treatment and hospitalization.

The result is that residents with advanced dementia who have Medicare skilled nursing home care without any hospice care have a far greater likelihood of dying in the hospital and receiving aggressive treatments such as feeding tubes or physical therapy within weeks of death.

May 24, 2012

Dotty is Still With Us, 6:40 PM, May 24, Its Getting Closer

Dotty is not thrashing around, or showing any signs of pain.

By Bob DeMarco
Alzheimer's Reading Room

Dotty is Still With Us, 6:40 PM, May 24, Its Getting Closer
Dotty is clearly evidencing the near death breathing that is often called the "death rattle". From time to time it slows, but not in the last few hours.

Dotty also has a fever which is being controlled. She is still warm though.

Dotty has been unresponsive for more than a day now. Although, she has had a few moments where she opened her eyes, and even tried to smile back at me. Also, at the social worker that came by from Hospice today.

May 18, 2012

Dotty Still With Us 9 AM, Some Enchanted Evening

As I was rubbing her feet, Dotty's eyes popped open and she gave me that sweet little Dotty smile.

By Bob DeMarco
Alzheimer's Reading Room

Dotty didn't say anything most of the day yesterday even though I talked with her quite a bit. She was saying a lot with her face.

Around 6 PM I was standing at the tip of her bed, smiling at her. Out of the clear blue sky she said, "Bobby, I'm thirsty". I might add in a strong voice.

A couple of hours later I went once again to the tip of her bed and started rubbing her feet. I think the feet go first. This was the case with my father.

As I was rubbing her feet, Dotty's eyes popped open and she gave me that sweet little Dotty smile.

Jan 21, 2011

Hospice Care and Dotty

Is Dotty eligible for Hospice care? ... We would welcome Hospice into our home with open arms...

By Bob DeMarco Alzheimer's Reading Room

Let me thank each of you, one by one, for the wonderful comments you wrote earlier today under the article -- The Dotty Dilemma, What to do with my Alzheimer's Patient?

When it comes to caregiving, and Alzheimer's caregiving, I must be one of the most fortunate persons in the World. I won't even bother thinking about what it would be like without all of you.

Instead, I'll use your kind words in the positive spirit in which they are offered.

Dec 19, 2010

Angil Tarach-Ritchey on Hospice Care

Eliminating Medicare payment for hospice services will be a human tragedy! ....
Alzheimer's Reading Room

This comment and reaction on Hospice care by Angil appeared under the article, Now I'll Tell You About Franny, and Hospice Care Increasing for Nursing Home Patients with Dementia .

Margaret on Hospice Care

The Hospice team was a Godsend.... Hospice truly takes care of not only the patient, but the family unit as a whole....
Alzheimer's Reading Room

This comment by our reader Margaret on Hospice care appeared under the article, Now I'll Tell You About Franny, and Hospice Care Increasing for Nursing Home Patients with Dementia .

Pat on Hospice Care

We thought that hospice did more for my dad than any other organization.....
Alzheimer's Reading Room

This comment on Hospice care by our reader Pat appeared under the article, Now I'll Tell You About Franny, and Hospice Care Increasing for Nursing Home Patients with Dementia .


Dec 18, 2010

Now I'll Tell You About Franny, and Hospice Care Increasing for Nursing Home Patients with Dementia

I have a dream. A goal really. To keep Dotty here at home until the end. I know I'll need help, and I hope that help comes from Hospice....
By Bob DeMarco
Alzheimer's Reading Room

Few people know this. Caring for Dotty is my second tour of duty. Back in 1991 my father was diagnosed with terminal cancer. He had a wish -- to die at home.

The doctors thought he would last 3 months. We have some monster genes in this family, he lasted 11 months.

For the first eight months, Dotty did it with the help of friends. Little young Dotty, she was only 75 back in those days.

Finally, she just couldn't handle it. That was the first time I dropped out of the World for a while.