Oct 17, 2018

How I Used My Forehead to Calm My Mother Living with Alzheimer's

Caring for a person living with Alzheimer's is difficult. Sometimes you just don't know what to do. Imagine my mother saying to me - "get out, I can take care of myself". Imagine what that felt like?


Caring for a person living with Alzheimer's is difficult. Sometimes you just don't know what to do.

I took care of my mother, Dotty, for eight and a half years, 3,112 days.I know what it feels like to be a caregiver. I understand.

One of the biggest, most hurtful problems I faced was when she would tell me - "get out, I don't need you, I can take care of myself".

There I was. I had quit my job, dropped out of the world, and I was taking care of her 24 hours a day, seven days a week. When she said those words it felt like she didn't appreciate me or my effort. Every time she said it, which was often, it hurt me, it hurt my heart.

Then one day I decided to try and do something different to diffuse this problem.


Oct 13, 2018

Dementia Patient Wears the Same Clothes Over and Over

If you'd met him late in his dementia, you'd invariably see him in a stained plaid shirt and baggy, wrinkled gray trousers -- day after day after day.


If you'd met him late in his dementia, you'd invariably see him in a stained plaid shirt and baggy, wrinkled gray trousers -- day after day after day.
By Paula Spencer Scott
Alzheimer's Reading Room

My father had always been a careful dresser.

After he retired from his life of white shirts and ties, he wore a full rainbow of golf shirts and owned more cardigans than Mister Rogers.


You Cannot Leave a Person Living with Alzheimer's Alone

It is an enormous sacrifice but you cannot leave a person living with dementia at home alone. They just can't deal with it.


You Cannot Leave a Person Living with Alzheimer's Alone | Alzheimer's Reading Room
By Bob DeMarco
Alzheimer's Reading Room


At a certain point in the development of dementia, as the dementia progresses, a person cannot be left alone.


Dementia patients do not "cope" well when left alone.


Oct 11, 2018

Dementia Care, 4 Suggestions on How to Take the Car Keys Away from a Person Living with Dementia

Our expert Rita Jablonski wrote a very useful article with 4 suggestions on how to take the car keys away from a person living with Alzheimer's or a related dementia.


driving on a lonely raod

This is a major problem for most caregivers and often leads to a lot of anxiety, stress and arguments.


Amazingly, Dotty often told me she hired an attorney, and he was going to get her license back for her so she could start driving again. She was still telling people she was driving every day for years after I took her car keys away.

Oct 10, 2018

Dementia Care, Should A Caregiver be Truthful or Kind?

Alzheimer's care, is it more important to be truthful and cruel, or to be kind?


"Today I bent the truth to be kind, and I have no regret, for I am far surer of what is kind than I am of what is true"

By Bob DeMarco
About Alzheimer's Reading Room

I had an interesting and wonderful conversation with Susan Frederickson, the Caregiver Program Specialist, for the Area Agency on Aging of the Permian Basin (Midland, Texas).

Susan is full of knowledge and has a deep understanding of Alzheimer's caregiver life. We talked about a long list of issues that Alzheimer's caregivers deal with each day, and as a result I decided to write about "Lies".

About how difficult it can be when a person living with Alzheimer's asks a question that if answered "truthfully" is more likely to cause sadness, confusion, or might be met with challenging behavior.


Oct 2, 2018

Psychotropic drug use is common in Alzheimer’s disease

Up to half of people with Alzheimer’s disease (AD) use a psychotropic drug, and one in five uses two or more psychotropics concomitantly, according to a study conducted at the University of Eastern Finland.


Psychotropic drug - use is common in Alzheimer’s disease
Psychotropic drug use was more common among persons with Alzheimer’s five years before the diagnosis, and the difference to comparison persons without AD increased at the time of diagnosis.

Four years after the diagnosis, psychotropic drug use was three times more common in persons with AD than in persons without Alzheimer's Disease.


Psychotropic drugs are frequently used for the treatment of behavioral and psychological symptoms of dementia in persons with Alzheimer's disease (AD). Evidence for benefits are limited and concerns have been raised about the safety, especially for the concomitant use of multiple psychotropic drugs.