Mar 22, 2011

I Feel So Helpless

This is a call on the Collective Brain of the Alzheimer's Reading Room...
Alzheimer's Reading Room

The Collective Brain
Under the article -- Alzheimer's Caregiving Like Algebra 101 -- we received this comment.


I feel so helpless. I don't know what to do when he becomes so anxious. I feel like I am doing everything wrong. I have been caring for my husband for 2 years.

This comment really sent be back to the first two years of my own caregiving experience. I remember feeling helpless, disoriented, and at wits end.

I wouldn't say Dotty was anxious. I would say she was scared.

Even after two years, she was still being mean. And, I was still trying to figure out what I could do to change the dynamic.

The change for us didn't come all at once. It came in little baby steps as one thing led to another. Exercise. Nutrition. And then the big decision -- to start living our life the way we had. Socialization. And the combination therapy -- Aricept and Namenda.

Once we came out of our cave things did start to get better. We started meeting people while we were out that were really wonderful to Dotty. Once we turned the corner one thing led to another and things continued to improve.

What would you say to this reader?

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Bob DeMarco is the Founder of the Alzheimer's Reading Room and an Alzheimer's caregiver. The blog contains more than 2,390 articles with more than 272,100 links on the Internet. Bob resides in Delray Beach, FL.

Original content Bob DeMarco, the Alzheimer's Reading Room