Jun 10, 2012

Alzheimer's Reading Room Writers and Contributors

Bob DeMarco, Founder, Alzheimer's Reading Room

Bob DeMarco, Founder, Alzheimer's Reading Room
Bob DeMarco is the Founder and Editor of the Alzheimer's Reading Room and an Alzheimer's caregiver. 
His mother Dorothy lived with Alzheimer's disease. Bob is a recognized Alzheimer's Influencer, speaker, and writer. The Alzheimer's Reading Room has more than 5,000 articles in its knowledge base


Rudy Tanzi, Neuroscientist, Harvard, Mass General

Received the 2015 Smithsonian American Ingenuity Award and was named to the 2015 list of TIME100 Most Influential People in the World.

Dr. Rudolph Tanzi is the Vice-Chair of Neurology, Director of the Genetics and Aging Research Unit, and Co-Director of the McCance Center for Brain Health at Massachusetts General Hospital, and serves as the Joseph P. and Rose F. Kennedy Professor of Neurology at Harvard Medical School.
Dr. Tanzi has published over 400 papers and has received several awards, including the Metropolitan Life Foundation Award and Potamkin Prize. Rudy and Deepak Chopra wrote, Super Brain, Unleashing the Explosive Power of Your Mind to Maximize Health, Happiness, and Spiritual Well-Being.

Rita A. Jablonski

Rita A. Jablonski PhD, CRNP, FAAN, is a Professor at the University of Alabama at Birmingham School of Nursing. 
She also practices at the Memory Disorders Clinic. Her research involves ways to prevent and reduce care-resistant behavior in persons with dementia.
She also acts as a coach for caregivers. Learn More at DementiaCentric Solutions.

Tom and Karen Brenner, Montessori Gerontologists

Tom and Karen Brenner train family members, professional caregivers and medical staff in the use of cutting edge interventions for persons who have dementia and Alzheimer’s. The Brenners use the Montessori Method as the foundation for their evidence based memory support program. This program uses the five senses, muscle memory, and spiritual engagement to maintain connections for persons with memory loss. Tom and Karen are the authors of You Say Goodbye and We Say Hello: The Montessori Method for Positive Dementia Care

Marie Marley

Marie Marley
Marie Marley, PhD, was a caregiver for Dr. Edward Theodoru, her delightfully colorful, wickedly eccentric Romanian soul mate, for seven years. After he passed away in 2007, she wrote an award-winning book about their relationship, Come Back Early Today: A Story of Love, Alzheimer’s and Joy. In the course of narrating their 30-year love story, Marie illustrates the solutions she found to 14 different issues that typically arise when loving and caring for someone with dementia.

Carole B. Larkin, Geriatric Care Management

Carole Larkin MA, CMC, CAEd, DCP, QDCS, EICS is an expert in Alzheimer’s and related Dementias care. She also is a Certified Geriatric Care Manager who specializes in helping families with Alzheimer’s and related dementias issues. Carole can consults with families via telephone nationwide on problems related to the dementia. Her company, ThirdAge Services LLC, is located in Dallas, TX.

Max Wallack, Science, Games

Max Wallack is a student at Boston University and a Research Intern in the Molecular Psychiatry and Aging Laboratory in the Department of Pharmacology and Experimental Therapeutics at Boston University School of Medicine. His great grandmother, Gertrude, suffered from Alzheimer's disease. Max is the founder of PUZZLES TO REMEMBER. PTR is a project that provides puzzles to nursing homes and veterans institutions that care for Alzheimer's and dementia patients. Max is also coauthor of the book, "Why Did Grandma Put Her Underwear in the Refrigerator? An Explanation of Alzheimer's Disease For Children"

Stephen G. Post

Best-selling author of The Hidden Gifts of Helping (2011), Stephen Post is Director of the Center for Medical Humanities, Compassionate Care and Bioethics at Stony Brook University. His book
The Moral Challenge of Alzheimer Disease: Ethical Issues from Diagnosis to Dying was selected as a “Medical Classic of the Century” by the British Medical Journal (2009). He received the Distinguished Service Award from the National Board of the Alzheimer’s Association “In recognition of personal and professional outreach to the Alzheimer’s Association Chapters on ethics issues important to people with Alzheimer’s and their families” (1998).

Rita Altman

Rita Altman, R.N., M.S.N., C.V.M., is the Vice President, Memory Care and Programming for Sunrise Senior Living where she uses the latest evidence-based research to design and oversee the implementation of Sunrise's memory care and assisted living programs.

David Shenk

David Shenk is the author of six books, including The Genius in All of Us, The Forgetting: Alzheimer's, Portrait of an Epidemic, Data Smog, and The Immortal Game. He has contributed to National Geographic, Slate, The New York Times, The Wall Street Journal, Gourmet, Harper's, Spy, The New Yorker, NPR, and PBS, and is a correspondent for TheAtlantic.com. The Forgetting won First Prize in the British Medical Association's Popular Medical Book Awards. Shenk has advised the President's Council on Bioethics, directed five short animated "pocket films" about Alzheimer's, and is a Senior Advisor to the Cure Alzheimer's Fund.

Rachael Wonderlin

Rachael Wonderlin Alzheimer's Reading Room
Rachael Wonderlin has a Master’s of Science in Gerontology from the University of North Carolina at Greensboro. She works as a Memory Care Program Coordinator and Manager at Clare Bridge of Burlington in Burlington, NC. Rachael also writes on her own blog at Dementia By Day.


Mara Botonis

Mara Botonis | Alzheimer's Reading Room
Mara Botonis is an author and Alzheimer's Advocate. She was honored in 2015 with the Jefferson Award, the “Nobel Prize” of Community and Public Service. She is the author of When Caring Takes Courage, and frequent contributor of articles on Alzheimer's and dementia care.


Dr. Brent Forester

Dr. Brent Forester is the Medical Director at the Geriatric Neuropsychiatry Unit at McLean Hospital in Belmont, MA. Dr. Forester attended Dartmouth College and later went onto Dartmouth Medical School.  His fellowship in geriatric psychiatry was done at Dartmouth Hitchcock Medical Center.

Dr. Forester's clinical interests include: Geriatric Psychiatry: Late Life Depression, Alzheimer's Disease and related disorders, Geriatric Bipolar Disorder.

Pamela R. Kelley

Pamela R. Kelley Pamela R. Kelley is the full-time caregiver for her mother. Before her caregiving role took primacy, Ms. Kelley directed an American Bar Association-approved paralegal education program at the University of Alaska Anchorage from within UAA's Justice Center. As she transitioned to full-time caregiving, she prepared a resource manual and presented lectures on long-distance caregiving to her UAA colleagues. She lives, works and writes in Anchorage, Alaska.

P.K. Beville

P.K. Beville is a specialist in geriatric care and author of the Virtual Dementia Tour™ (VDT) series. She also created the Family Edition to help sensitize families to the plight of their loved one with cognitive impairment. The goal is to help families develop realistic approaches to care. The VDT is a product of Second Wind Dreams® with proceeds going to help change negative perception of aging.
P.K. is available for behavior help at www.geri-help.com

Richard S. Isaacson

Richard S. Isaacson, MD serves as Vice-Chair of Education and Associate Professor of Clinical Neurology at the University of Miami Miller School of Medicine. He is the author of the several books including: The Alzheimer's Diet: A Step-by-Step Nutritional Approach for Memory Loss Prevention, and Treatment and Alzheimer's Treatment Alzheimer's Prevention: A Patient Family Guide (in English/Spanish).

Rose Lamatt
Rose Lamatt is an author and a citizen journalist. Rose first learned about Alzheimer's while caring for her dear friend Carol for 14 years. Rose is experienced in adult day care, assisted living, and Alzheimer's support. Her wealth of experience led her to write Just a Word--Friends Encounter Alzheimer's. Rose is a writer/contributer to the Alzheimer's Reading Room.

Wantland J. (Jay) Smith

Wantland J. (Jay) Smith was diagnosed with early Alzheimer’s disease in late 2005, based on neuropsychological tests and FDG/PET. Since diagnosis, he became an early stage Alzheimer’s advocate, creating the first early stage memory loss forum of the California Southland Chapter of the Alzheimer’s Association in October 2007, and led their second early memory loss forum in March 2009. He has participated in three early stage support groups, including the one he instigated and currently co-facilitates Leeza’s Place. He frequently shares his story as a panelist and through press interviews.

Carol Blackwell
Carol Blackwell lives in Northern Virginia with her husband Bob. Bob was diagnosed with Alzheimer’s in 2006. Carol is a part time leadership coach and instructor. Both Carol and Bob are active advocates in the fight against Alzheimer's disease. Bob and Carol are frequently featured on the USA Today website.

Mary Gazetas

Mary Gazetas is an artist, writer, volunteer who lives in Richmond B.C. Canada. Four years ago she knew nothing about Alzheimer’s. In fact she didn’t even know how to spell that word. At first she and her husband were overwhelmed by so much information available. Looking back it was a slow learning curve. Once diagnosed (February 2008) the progression of her husband’s Alzheimer’s was fairly slow until he went into a steep and sudden decline. Since then, Mary has continued to learn more - especially in the context of how to provide the best care in a residence environment.

John T. McFadden

John T. McFadden is an ordained minister of the United Church of Christ who served in parish ministry for 34 years. He writes and speaks extensively about aging, spirituality and dementia, and serves as chaplain to the memory care unit of the Appleton Health Care Center. He has most recently authored a brief pamphlet about dementia for use in religious congregations titled Aging, Dementia and the Faith Community: Continuing the Journey of Friendship. He serves on the steering committee of the Fox Valley Memory Project.

Mark A Smith

Dr. Mark A. Smith received his B.Sc. with Honors in Molecular Biology and Biochemistry from Hatfield College, Durham University, England (1986). He went on to earn a Ph.D. in Biochemistry from Nottingham University, England, in 1990. Dr. Smith spent the next two years as a Research Fellow at Sandoz Forschungsinstitut in Vienna, Austria before joining Case Western Reserve University.

Jason Karlawish

Jason Karlawish is a Professor of Medicine and Medical Ethics at the University of Pennsylvania in Philadelphia, Pennsylvania, and the associate director of the Penn Memory Center. He studied medicine at Northwestern University and trained in internal medicine and geriatric medicine at Johns Hopkins University and the University of Chicago. He is the author of the recently published book “Open Wound: The Tragic Obsession of Dr. William Beaumont.”

M.L. Swift

M.L. Swift is an aspiring writer of Young Adult fiction and an Alzheimer’s caregiver. His blog, Treading Water in the Goldfish Bowl, shares reflections of his life while caring for his mother, Mary Helen. M.L. resides in Crawfordville, FL.


Elaine C. Pereira
Elaine C. Pereira is a retired school occupational therapist who worked with special needs children. She earned her bachelor’s degree in occupational therapy from Wayne State University and later completed her master’s degree. Pereira and her husband live in Michigan. Elaine is the author of - I Will Never Forget: A Daughter's Story of Her Mother's Arduous and Humorous Journey Through Dementia

Mary Kay Baum
Mary Kay Baum is living well with cognitive changes. Her current calling is to promote prevention and early intervention of Alzheimer’s and related conditions. Mary Kay was a school board member, county board supervisor, attorney, court administrator, and director of Madison Urban Ministry. You can learn more about Mary at The Hope of Alzheimer’s: An Advocate’s Journey.

Angil Tarach-Ritchey

Angil Tarach-Ritchey (RN GCM) is a National Expert in Senior Care, with over 30 years in senior care and advocacy. She is a registered nurse and geriatric care manager, author, speaker, and consultant. Angil is the author of Quick Guide to Understanding Medicare, Medicaid and other payer sources.

Monica Heltemes

Monica Heltemes is a practicing occupational therapist and owner of MindStart™. MindStart designs hobby-style items, such as games and puzzles, specifically for persons with memory loss. They keep persons with dementia active, while giving support to caregivers, and are quick and easy to use. Visit MindStart (Activities for Persons with Memory Loss) to learn more.

Claudia Marshall-Apers

Claudia Marshall-Apers is the full-time caregiver to her mom, Pauline, who is in the moderate to severe stages of Alzheimer's/dementia. Claudia is a transplant from New York where she was born and raised and now lives in the beautiful landscape of  Rio Rancho New Mexico with her husband and 18 and 21-year-old sons, when they are home, along with their dog Cinnamon. Claudia holds a Master's in Art Education and is currently working on a series of artwork about Alzheimer's/dementia.

Nicholas Simmons-Stern

Nicholas Simmons-Stern is an undergraduate at Yale University, where he studies the cognitive neuroscience of music. He has worked for four years as a research assistant at the Center For Translational Cognitive Neuroscience. In 2009, he and the research team at the CTCN began their exploration of the memory-enhancing properties of music in Alzheimer’s disease (see Simmons-Stern, Budson, and Ally, 2010).

Jennifer Scott

Jennifer Scott has been in healthcare since 1984, working with a variety of people with disabilities. She has delivered numerous speaking and educational presentations about Alzheimer’s disease and how to care for those suffering with dementia. Jennifer is currently Director at Area Agency on Aging of the Capital Area (Austin, Texas), and Founder at JAS Senior Care Consultants

Cass Alexander
Cass Alexander is the media advisor with Alzheimers New Zealand. She has been in the role just over a year and works from New Zealand’s capital city, Wellington. Prior to this, in another not for profit role, Cass worked for the American Field Service (AFS), organising publicity and writing publications. She has also worked in various roles in London and Ireland.

Carol Wright (CJ)

CJ Wright is the sole caregiver for her mother who is in a late stage of Alzheimer's disease. CJ shares her insight, advice and experience at When does the glad start: Caring for Alzheimer's. She currently resides in Silicon Valley, California.

Donna McCullough

Donna McCullough, PhD received her Doctorate degree in Clinical Psychology in 1994 from Washington University in St. Louis, Missouri. She has a private practice in Laguna Hills, CA. Donna has a special interest in spirituality and psychology, and she incorporates mindfulness and meditation into her work with clients. Donna is co-founder of Affirmative Therapy Products.

Celia Pomerantz

Celia Pomerantz is a creative sales and marketing strategist, and inspirational speaker on Alzheimer's Caregiving. Celia is the author of Alzheimer's: A Mother Daughter Journey a photojournalistic memoir about Celia's experience as the primary caregiver for her mother who had Alzheimer's disease.

Mike Donohue

Mike Donohue is a Husband, Father, Grandfather and good friend to some wonderful people. He likes to read, to write and to try and figure it all out. His life has had its ups and downs. It has given him insight into where he has been, why he was there, and where it is leading to. The most profound events in my life were recovery from Alcoholism in 1974 and diagnosis of Alzheimer's disease in 2006. The first was my Watershed, the second my Epiphany. Mike writes at My Alzheimer's Afterthoughts!

Olga Brunner

Olga Brunner, M.Sc., Healthcare Administration and Gerontology. Dedicated to her client's concerns, Ms. Brunner's background has over 20 years service in health care administration and seven years of professional geriatric care management experience. She specializes in dementia care services and exhibits exemplary care and dedication to her senior clients. You can learn more about Olga and her services at A Good Daughter Knows.

Sheryl Lynn

Sheryl Lynn is the author of the upcoming book "The Light Is A Thank You," which chronicles the spiritual journey through dementia she has taken with her mother, Eleanor. She is the host of "Glow With The Flow Radio Show," currently on hiatus.


Vicki de Klerk-Rubin

Vicki de Klerk-Rubin is on the Board of the Validation Training Institute and a certified Validation Master. She holds a BFA degree from Boston University, an MBA from Fordham University and is a Dutch-trained RN. Since 1989, Mrs. de Klerk has given Validation workshops, lectures and training courses throughout Europe, Japan and the U.S. For more information about Validation, please see our website, Validation Training Institute.

Ellen Belk
Ellen Belk is President of Keep In Mind™ and creator of Memory Magz™. Since 2001, Belk has specialized in developing programming for the memory impaired. A mature musician concert band, an intergenerational Senior Prom and a Fine Art appreciation program are amongst her professional highlights. Memory Magz™ are ‘magazine style’ picture publications with full page vibrant images purposefully designed for people with cognitive decline and/or developmental disabilities. As a public speaker, Belk engages the audience with her inter-active style and witty story telling. www.keepinmindinc.com


Barbara Pursley

Barbara Pursley was born in Galveston, Texas and is the author of EMBRACING THE MOMENT.   Barabara attended Santa Monica College, studied photography, and worked as a commercial photographer before returning to Texas to care for her mother. Barbara also taught journal writing to women in Texas rehabilitation facilities. She put her God inspired journal entries and photographs into book form in 2009.

Laura Bramly

Laura Bramly is a writer, editor and graphic designer. She recently created Life Scenes, a book that helps people with moderate to advanced dementia to read again. Laura blogs about dementia-related topics at Mindset Memory Centre. She lives in Canada with her husband and two children.

Dorothy DeMarco

Dorothy DeMarco is a contributing writer and frequently portrayed character on the Alzheimer's Reading Room. Dotty resides in Delray Beach, FL. 

Cheryl Appel Rosenfeld

Cheryl Appel Rosenfeld is editor-in-chief for CenterWatch, a global source of clinical trials information and publications. Previously, Cheryl was Assistant Business Editor/Special Sections Editor at The Boston Globe and Assistant Business Editor at the Boston Herald. She holds a B.A. from Brandeis University and an M.S. from the Columbia University Graduate School of Journalism. She was the primary caregiver for her mother, an Alzheimer’s sufferer, for six years.

Sydney S. Farrier
Sydney S. Farrier is a Licensed Clinical Social Worker with over 40 years of experience working with adults and children. Sydney has held positions of Director of Social Work and Executive Director in nursing facilities and an Alzheimer’s Assisted Living facility in the Dallas area, worked for the Dallas Chapter of the Alzheimer's Association, developing and implementing the “Trailblazer” program which provides education and support to those with early stage and young on-set Alzheimer’s disease and related dementia. She is currently at partner in DFW Aging Solutions, LLC, a company that provides continuing education for professionals in the field of health care and Alzheimer’s care.

Dr. Joshua Daniel Uy
Dr. Joshua Daniel Uy, MD, specializes in geriatric medicine, is a family physician, and clinician educator. He is a Clinical Assistant Professor at Penn Medicine, part of the University of Pennsylvania. Dr Uy is a graduate of the University of Michigan Medical School. He is a member of the Christian Medical and Dental Association, American Academy of Family Physicians, American Geriatric Society, and American Medical Directors Association. You can read more by Dr Uy at THE GERIATRICIAN..

Cindy Keith
Cindy Keith, RN, BS, CDP has extensive experience working with Alzheimer's and dementia patients. As a nationally known speaker, Cindy regularly travels throughout the United States giving day-long seminars on the importance of facility staff training in all aspects of dementia care. Cindy is the author of Love, Laughter, & Mayhem - Caregiver Survival Manual For Living With A Person With Dementia. She an be reached through M.I.N.D. in Memory Care

Donna Giovannetti
Donna Giovannetti is Director of Marketing and Broker Relations at Diversified Lenders Inc. in Lubbock, Texas. Her father suffers from Alzheimer's disease.

Margaret Toman
Margaret Toman is an Alzheimer's caregiver, and cares for her 97 year old mother, Lou Longest, who is in an advanced stage of Alzheimer's disease. They live together in Garner, North Carolina.


Diane Keefe
Diane Keefe earned her MA in Gerontology from Webster University in St. Louis and formed A+ Aging Advantage in 2006. Ms. Keefe belongs to the National Association of Professional Geriatric Care Managers and participates in the local Midwest Chapter. She is President of the Mid-east Area Agency on Aging Foundation and secretary of Breakthrough Coalition, a consortium of over 200 agencies working with the elderly. Ms. Keefe speaks for the Alzheimer’s Association Speaker’s Bureau.

Sharon Gregoire
Sharon Gregoire, Minneapolis, is an occupational therapist and president of Therapy Solutions. She has written a short workbook, I Still Enjoy a Good Laugh!, that provides an opportunity for the person with Alzheimer's Disease to record and share hopes, wishes and wisdom while beginning to discover self-advocacy skills.

Viki Kind
Viki Kind MA, is the author of The Caregiver's Path to Compassionate Decision Making - Making Choices for Those Who Can't. You can learn more about Viki at TheCaregiversPath.com


Karen Matthews
Karen Matthews and her husband, Randy, live in Leawood, Kansas and are full time caregivers for Karen’s 89 year old mother, Louise. Karen is a residential real estate agent with Reece & Nichols in the Kansas City metropolitan area. Karen has an MBA. 

Marty D
Marty D is a stay-at-home daughter caring for her aging parents. Her mother suffers from late-stages Alzheimer’s and her father from Parkinson’s. Marty is learning that patience and grace are essential toward those suffering from a disease as well as toward those weighed down by their care. She is the author of The Amazing Aging Mind blog.

Linda Fisher
Linda Fisher published two books from her early onset blog -- Essays from an Online Journal and The Friendship Connection. She was the project leader for Alzheimer’s Anthology of Unconditional Love. Linda is working on a nonfiction therapeutic writing book and a fiction anthology. Linda blogs at Early Onset Alzheimer's.

Judy Dearing
Judy Dearing writes about Alzheimer's, her mother Chrissy, and life as an Alzheimer's caregiver at Chrissy's Moments.

Lee and Pat Sneller
Lee Sneller has a BS in Industrial Engineering from Stanford and an MBA from California State at Los Angeles. He was an executive with a variety of manufacturing companies over his 35 year career. He also was a professor of industrial engineering at several universities before and after his retirement in 2000. Lee was diagnosed with MCI in 2005 and with Alzheimer’s in 2009. Pat has a BS in business from California State at Fresno, is Lee’s sole caregiver, and works part time from their home. Pat also serves on the 2010-2011 National Early Stage Advisory Group for the Alzheimer’s Association. Additionally both are Alzheimer’s Ambassadors, advocates who advance legislation critical to those affected by Alzheimer’s. They also are faithful readers of this blog and friends of Carole Larkin.

Carol Trickett

Carol Trickett is the wife and caregiver of her husband Bob. Together they live in Thorndale, Ontario, Canada. Carol is also the owner of Trickett Glass and works from her home studio where she offers custom designed window panels, giftware, repairs, and classes. You may view her stained glass work at www.trickettglass.ca.

Lynn F Walker
Lynn F. Walker is an artist with a wacky sense of humor. Her mom lives with her and she sees each day as a new challenge and another laugh. Lynn blogs at YOU'RE MY DAUGHTER?


Peggy Blevins
Peggy Blevins is a missionary who works with severely language deprived children and trains teachers of the deaf in hispanic countries.


Faye LaPorte
Faye LaPorte is a dementia specialist at BrightStar Care of Grosse Pointe / Macomb provider of private-duty home care to help keep seniors independent and in their own homes. She is certified in the Alzheimer’s Association essentiALZ™.

You can learn more about how Faye approaches caregiving by visiting the BrightStar website.

Danielle Tessa Scott
Danielle Tessa Scott is 18 years old, and a freshman at Saint Michaels College. She majors in Biology and intends to pursue a career in a field related to physical therapy. Daniell'a grandfather Harold Wellington Smith Jr., PopPop, is 82 years old and currently lives in Alfredo Gonzalez Texas State Veterans Home, McAllen, Texas. She grew-up and currently lives ina in the house that he designed and built with his own two hands.

Lin Cochran
Lin Cochran is veteran newspaper writer, magazine columnist, feature writer, and author. Her husband was diagnosed with Alzheimer's in 2011. Lin is currently working on her fourth book, Suicide Angels, the Metaphysics of Suicide, Where are they now? Lin also writes on her own blog, The Alzheimer's Multiverse.

Bill Schoux
Bill Schouxis 71 and a retired Foreign Service Officer with the US government's foreign aid agency, USAID. He joined USAID during the Vietnam war, served there for 4 years, and was then posted in Washington, DC, After retiring from the governent in 1992, he and his wife Elise were consultants in democracy and governance with assignments in Central and Eastern Europe, Africa, and Asia. Bill still speaks Spanish and retains enough Vietnamese to order in a favorite restaurant. He was diagnosed with MCI in late 2003 and dementia of the Alzheimer's type in 2009. His wife, Elise, is his caregiver and partner in all things, including the fight against Dr. Alzheimer. Although life is different and has its challenges, they stay focused on good things and each other.

C J Pittsburgh
"CJ" and her husband Ed are caregivers for his 88-year old mother, Kay. After her husband's death, Kay was alone, didn't drive, had few friends and relatives around, and barely knew how to change a light bulb! CJ and Ed have lived along with Kay for over two decades. 
Their role has changed gradually over those years! They are the ones!

Jackie Bowlin
Jackie Bowlin is caretaker to her mother who suffers from Alzheimers disease. In her spare time she enjoys writing poetry and being with her grandchildren. Jackie resides in Bullhead City, AZ where she enjoys the slow pace of a small town and the quiet beauty of the surrounding desert.

Linda Halstead-Acharya
Linda Halstead-Acharya, a former reporter for the Billings Gazette in Billings, Montana, is now a freelance writer working on a book about her experience with Alzheimer's disease. Before losing her mother to advanced Alzheimer's disease in December 2011, she provided support for her father, her mother's prime caregiver.

Charlotte Parker

Charlotte Parker is the co-author of Return to Joy: A Family’s Initiation into the Mysteries of Dementia. This book is a tale of two sisters and how they came together to face the world of dementia with their mother.

Susan Larsen Daigle
Susan Larsen Daigle, PhD, has 30 years experience in Public Health. She perceives healthcare as a way to make a positive difference, restore equity and ensure the future is better than the past. Susan cared for her sister and former spouse. She understands the feelings of despair and loneliness that caregivers can feel, the danger of losing ones self in the process. Learn more at Co-Hearts in Care Giving.

Debbie Schultz
Deborah Schultz recently spent 2 months carrying for her father with advanced Alzheimer's after her parents were hit by a drunk driver. She helps small businesses use the Internet to market their companies online. She writes about Alzheimer's on her website Alzheimer's 24-7

Nancy Iannone
Nancy Iannone is a Licensed Baccalaureate Social Worker, graduating with her BSW from Wartburg College, Waverly, Iowa. She is a Certified Geriatric Care Manager based on the stringent requirements of the National Association of Professional Geriatric Care Managers (NAPGCM). Nancy is a member of the National Association of Social Workers, NASW Arizona and the Arizona Hospice and Palliative Care Organization. CarePath Senior Solutions.

Cindy Ward
Cindy Ward is a long term care insurance specialist. 


Andrea Brown

Andrea Brown. I am working on a dissertation for my PhD on caregivers of people with Alzheimer's disease. The study is to find from these family caregivers what resources help, barriers to using them, and what their experiences are and have been. I will share my results by printing and publishing when my dissertation is finished.

I knew very little about Alzheimer's prior to my caregiving experiences, though I had worked in the area of mental health. I also address grief and loss issues as part of the dissertation.

Jane MacKenzie

Jane MacKenzie is a self described woman that gets things done and aspiring writer/blogger. She lived Alzheimer's from the Front Row while caring for her father.

J. Michael Steinhardt
J. Michael Steinhardt is a Wisconsin born, retired insurance executive, essayist, short story writer, and political commentator. He received his BA from the University of Wisconsin - Milwaukee. Mr. Steinhardt has published in several literary publications as well as local and national newspapers. He is also an Alzheimer's caregiver.

Mal Ernst
Mal is 82; born January 20, 1930. Dean, his wife of 41 years, is 86; she was first diagnosed with Alzheimer’s 3-1/2 years ago. He retired from the Nuclear Regulatory Commission in 1989 and has since consulted for the nuclear power industry, sold residential real estate, been President of several homeowners Associations, and been active in managing activities at several member-owned country clubs. He plays some golf, bowls, and enjoys some yard work; and they still travel and enjoy eating out.

Rita Mahan

Rita Mahan is 58 years old and retired from jewelry business Rita has two children and currently Lives in Cape Cod, MA.

Kathy along with staff at a skilled nursing facility in Central North Carolina, I am a caregiver for my husband, Tim. He was diagnosed with frontotemporal dementia at the age of 50 after 4 years of traveling near and far for answers to our many questions. He will turn 60 in August of 2010. He is a beloved son, brother, uncle, husband, father, and friend. He is amazing and courageous and inspires me every day.


Kevin Stacey, Brown University

Michael C. Purdy, Washington University School of Medicine

Alison Trinidad, University of Southern California

Jocelyn Delaney

Janet Stinson Therrien

Dennis Fortier, Brain Today

Mike Williams, Rice News

Bruce Goldman, Stanford University

Lisa De Nike, The John Hopkins University Gazette

Michelle L. Brandt, Stanford University

Julia Evangelou Strait, Washington University

Krister Svahn

Meredith Walker

Laura Bailey, University of Michigan

Diane Jones

Rachel Champeau, UCLA Newsroom

Sandy Leander, Arizona State University

Christine Kueter, University of Virginia

Henry McCambridge

Marilee Griffin, Univeersity of Florida