Jan 4, 2012

We are the Guardians, the Alzheimer's Caregivers

We defend, protect, look after, and care for those living with Alzheimer's disease.

By Bob DeMarco
Alzheimer's Reading Room

A person living with Alzheimer's or any type of dementia is very fragile. You don't hear much about this in the media, or when the so called experts are testifying before government officials.

How many people really understand what it feels like to be living with dementia? How many understand?

Somehow, people living with dementia, and their caregivers become invisible.

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The numbers indicate that 80 percent of persons living with dementia are cared for at home. The majority of these persons have one single caregiver that is going it alone. We are called the ONE.

We are the Guardians.

I rarely hear discussions about the enormous responsibility that Alzheimer's caregivers accept. Or, is it the enormous responsibility we take on?

Just yesterday, we published an article, Police Say Alzheimer's May Have Contributed to Deadly Shooting (Video), which shows what can happen when a person living with dementia goes unattended.

Could something similar happen to you, to me?

All but one of my mother's friends now refuses to take her anywhere. For example, they will sit next to her at bingo. However, they will no longer pick her up and give her a ride. They don't want the responsibility. Their biggest fear is that she will fall and hurt herself. I live with this fear 24 hours a day.

As the disease progresses, and you need more and more help, people are afraid to help, so you get less help. This is clearly one of the bigger vagarities (apparently I made this word up) of Alzheimer's caregiving.

In spite of this, we stand on guard.

We defend, protect, look after, and care for those living with Alzheimer's disease, and the other dementia's.

It is now 2012. Last year I had to listen while the so called experts said,

"Alzheimer's is a tragic epidemic that has no survivors. Not a single one."

I'm tired of hearing those words, or words to that effect.

This year I want to hear about the survivors, the guardians, and the role that Alzheimer's caregiver are playing in our society.

One of my goals this year will be to raise awareness of Us. To start explaining our role. To start talking more about our contributions.

We are the Guardians, and it is time to start explaining what the means.

More Insight and Advice for Caregivers

Bob DeMarco is the Founder of the Alzheimer's Reading Room and an Alzheimer's caregiver. The blog contains more than 3,261 articles with more than 402,100 links on the Internet. Bob lives in Delray Beach, FL.

Original content Bob DeMarco, the Alzheimer's Reading Room