May 7, 2012

Online Alzheimer's Support, and Dotty Update

Don't get me wrong. We are not giving up. I have no idea what tomorrow will bring.

The Alzheimer's Reading Room is a virtual place, an online place. But where would I be right now without it?

You read a lot about how kids these days communicate via text and online. Some worry that the lack of personal, face to face communication, is a bad thing. Maybe, maybe not.

I can say this with complete confidence. The emails and comments I received today, when I wrote about Dotty here in the virtual world, mean as much to me as face to face communication. I feel empowered, energized, and I know I am not alone.

The Alzheimer's Reading Room is a virtual place, an online place. Where would I be right now without it?

By Bob DeMarco
Alzheimer's Reading Room

I know one thing for sure, I would be feeling mighty lonely, and stressed out to the max. My level of stress went straight down today reading your best wishes and prayers to us.

I understand that I don't know most of you in person, but that does not stop me from feeling and believing that I know those of you who write to me, and those of you that share by commenting.

The comments section on this website are as important as any other part of the blog.

I probably won't get the chance to thank each and everyone of you by writing back. So, I'll do it right now.

Thank you.

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As I mentioned previously, I Would Rather Be Lucky Than Smart, Dotty Gets a New Doctor, we just moved to a new personal care doctor. My immediately impression was that we had finally found a replacement for the wonderful Dr Chiriboga. Today proved me correct.

We went into the examination room and before I could ask Dr Abreu, he asked me if I wanted Hospice. In fact, he looked me right in the eye and asked.

I had intended to ask for Hospice once we went through what was currently happening with Dotty.

So as I am writing, the paper work is flying. I expect to hear from Hospice by tomorrow and then I expect an in home evaluation by a Hospice nurse. We will take it one day at a time.

Right now my greatest concern is that Dotty is not eating, not much anyway. I am getting some liquids into her and some Boost. But so far, not enough.

To be honest, I had expected to be at this point at least two years ago. As I sit here typing, I am amazed, quite frankly, at how well the last two years together with Dotty have gone. There was a lot of happiness. My real life cartoon character Dotty, certainly filled me up with joy.

In New York I said, Dotty re-taught me how to think and feel. It is true.

How to Get Answers To Your Questions About Alzheimer's and Dementia

When a caregiver opens their heart they can get a feeling that is totally unexpected. Joy. This is my belief.

Don't get me wrong right now. We are not giving up. I have no idea what tomorrow will bring.

Could be sadness, could be joy. Either way I'll take it.

This has been one incredible experience with Dotty, and with all of you.

Its not over by the way, not by a long shot.


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Bob DeMarco  is the Founder of the Alzheimer's Reading Room (ARR). Bob is a recognized expert, writer, speaker, and influencer in the Alzheimer's and Dementia Community worldwide.

The Alzheimer's Reading Room contains more than 5,000 articles and has been published daily since July, 2009.

You are reading original content the Alzheimer's Reading Room

"The Alzheimer's Reading Room and Bob DeMarco are true treasures to Alzheimer's patients and their loved ones, especially their caregivers. As a scientist I visit the site every day for the always current research updates." 
"The world is incredibly fortunate to have this endless source of information and support. God bless you, Bob, and thanks for all you do!" 
Rudy Tanzi
Time Magazine's 100 most influential people in the world. Professor of Neurology and holder of the Joseph P. and Rose F. Kennedy Endowed Chair in Neurology at Harvard University.