Sep 24, 2012

Granny B Chicago

We will continue to live and love at whatever stage he is at. My name is lost but the loving eyes are still there. Thank you God!

Alzheimer's Reading Room

Granny B Chicago left the following comment under the article, Alzheimers Caregiver Why are the Little Things Bothering You?

Granny B Chicago Writes
I do not know if the is the "place" to tell my story (one of them)....but here goes.

I paid close attention when my husband started repeating things/losing things/etc and got help as soon as I could convince him to "let" me go to the Dr. with him.

His wonderful Dr. referred us to a neurologist that continues to help me.

Family and friends thought I was jumping the gun to say that Jerry had Alzheimers.

I always called it a memory problem because Jerry did not want to be like his Dad...who had Alzheimers.

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It was like an uphill fight with family and friends as I saw in the 24/7 hours the small but possible harmful actions he took.

I stopped leaving him alone in about the 5th year to even go to get a hair cut.

Also had the doctors give him a No Driving order. Critical comments continued.

I devoted my time to seeing that he was clean...learning his bath consisted of pouring a cup of water over himself, putting clean clothes out for the next day, because he refused clean clothes, getting him ready to go only to find that he had been out sweeping the street while I got ready!

The list goes on.

He is (still) a very social person.

We would go the garage sales just to "see" people. He loved to be with people.

Pre-no driving to have coffee at Walmart. I continued to take him.

During this time I was also dealing with my own health problems. After having a 3 day respite in year 7, I realized I could not continue the 24/7.

Having researched a couple of years earlier, I knew which Alz Unit seemed the best choice for us.

These three years in the unit have been good for us. He is safe (a secured unit) kept clean and is well liked.

We spend quality time together.

Early on we went out to eat weekly and two or three times a week...took a drive. As time went on, eating out was not possible, but we still went riding around.

Now leaving the unit alone together is not possible (agitation/fighting) we walk the halls of the bigger part of the NH, sit on the lovely front porch greeting all who comes and goes. Some call us Love Birds!!

I control any aggravation that could bring me .... Thinking .... if they only knew.

It is slow progress downward (our 10 years).

But we will continue to live and love at whatever stage he is at. My name is lost but the loving eyes are still there. Thank you God!

I'll start my own comment by saying, wow, amazing, wonderful.

Driving in the car, so easy to do, and it helps "eliminate, or at least lessen" agitation. Getting out into the light also makes a big difference in health and attitude.

You kept taking him for coffee. A wonderfully wise decision on your part. Living life as it is.

Sweeping the street? I can't help but smile. A very good form of exercise.

"See" people. When I read the books, which of course I stopped doing early on, it said that Alzheimer's patients can become irritable around crowded places, or around people they didn't know. I learned that is bull. You just have to be patient and find the right places. Garage sales, I really like that idea. Worth a try for sure.

I will add there are a lot of wonderful people out there in the world. They are more than happy to talk to a person who is deeply forgetful, and treat them just like they would any other person.

Love. Well he might be hard to handle at times but this is one thing I believe. If you are the one, they never stop loving you, in fact, they love you more.

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